My Childhood Cancer Database
MyChildhoodCancer.org is a database project created by Alex’s Lemonade Stand Foundation. This database aims to understand the different reasons and ways childhood cancer can impact families. Our goal is to better understand the childhood cancer journey in order to find ways to offer support to these families during their journey.
My Childhood Cancer Database works by collecting information through a series of anonymous surveys which are answered over time by families who have experienced childhood cancer. The series of surveys captures a global view of family dynamics, activities, behaviors and attitudes to understand the short-term and long-term impact of childhood cancer on the whole family unit. The information will be made available to the childhood cancer community for use in identifying influences and subsequent risk factors to families, as well as quantifying unmet needs, with the hopes that support programs can be created to address these identified areas.
As more families complete the series of surveys about their experiences, My Childhood Cancer Database will become an increasingly powerful tool!
It is our belief that this will have a real impact on the childhood cancer world and we invite all childhood cancer families to join in on this valuable project.
Childhood cancer affects the whole family, not only the child who receives the diagnosis. SuperSibs powered by ALSF is dedicated to empowering siblings during their family’s battle against childhood cancer, so these children and teens can face the future with courage and hope. Learn more!