The Childhood Cancer Database Project
MyChildhoodCancer.org is the Childhood Cancer Database project created by Alex’s Lemonade Stand Foundation. This database aims to understand the different reasons and ways that childhood cancer can impact families.
Information is collected through a series of anonymous surveys which are answered by childhood cancer families over time. The series of surveys looks to capture a global view of a child cancer patient’s overall life influences as well as pediatric cancer’s short-term and long-term impacts on the family unit as a whole. The information will be made available to the childhood cancer community for use in identifying influences and risk factors that impact the experience of families with childhood cancer, quantifying unmet needs of the families and allocating resources towards meeting the most critical needs of the families.
As more families complete the series of surveys about their experiences, MyChildhoodCancer.org will become an increasingly powerful tool!
It is our belief that this will have a real impact on the childhood cancer world and we invite all childhood cancer families to join in on this exciting project.