I'm holding a fundraiser to help raise money and awareness for Beckwith-Wiedemann Syndrome through Alex’s Lemonade Stand Foundation, which is committed to funding research into Beckwith-Wiedemann Syndrome (BWS) and related disorders.

All donations to the Beckwith-Wiedemann Syndrome Fund are restricted to research and advances in BWS and related disorders. Dr. Jenn Kalish, a leading researcher in the BWS community will lead the Scientific Advisory Committee for the fund - helping to set priorities and strategies for funding the most impactful BWS research. Read about Dr. Kalish's research recently funded by ALSF.

About Beckwith-Wiedemann Syndrome (BWS): BWS is a condition that affects many parts of the body. Children with Beckwith-Wiedemann syndrome are at an increased risk of developing several types of cancerous and noncancerous tumors, particularly a form of kidney cancer called Wilms tumor and a form of liver cancer called hepatoblastoma. Tumors develop in about 5-10 percent of children with BWS.

You can join me by helping me plan this event, or making a donation right to this page. The money you donate will pay for research to find better treatments and cures for childhood cancer. Please help kids and their families by providing desperately needed hope! Thanks for your support!