The Childhood Cancer Blog
The Childhood Cancer Blog
ALSF Founder Alex Scott was diagnosed with neuroblastoma in 1997.
Cole beat neuroblastoma; but did not know until 15 years and another cancer later that he had Li Fraumeni, a cancer predisposition syndrome. Cole passed away at age 19.
Arden, diagnosed over a decade after Alex, had newer, less toxic and more effective treatment options, thanks to research.
Tony beat neuroblastoma as a young child but was left with long term side effects.
When Alex’s Lemonade Stand Foundation (ALSF) Founder Alex Scott was diagnosed with neuroblastoma in 1997, doctors didn’t know her cancer was driven by ALK – a mutation that fuels the development of neuroblastoma cells. And even if they did, there wasn’t a treatment in 1997 for ALK-driven neuroblastoma.
But today, there are effective treatment options for that type of neuroblastoma, thanks to research.
Over the past two decades, incredible progress has been made in the treatment of neuroblastoma. From identifying targets and developing drugs to leveraging genetic testing... Read More
If you ask 9-year-old Quincy what he would do with $100,000, he’ll tell it to you straight:
“I don’t think that is a responsible thing to ask me,” he’d say with bright eyes shining under a full head of curls. Quincy is just an ordinary 9-year-old, after all. His concerns are playing sports (baseball, swimming, martial arts), messing with coding to make video games better, and finding some time on Saturday mornings to lay on his couch (which might be one of his favorite things).
When you ask Quincy’s parents what they’d do with $100,000 they have a ready answer: fund... Read More
Sa’Mari is a sweet, caring and resilient 5-year-old who loves playing outside with her siblings and her dolls. For years, cancer treatment ruled Sa’Mari’s life, but now that she’s in remission, Sa’Mari is ready to play, paint, draw, sing, dance and make this life all her own.
“I may have had cancer, but cancer doesn’t have me,” she says.
Sa’Mari was just 4 months old when her mom, Samia noticed something strange – Sa’Mari’s left pupil would appear white whenever she took a photo. She didn’t think much of the occurrence until their pediatrician suggested seeing an... Read More
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