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Alex's Lemonade Stand Foundation Blog

Welcome to the official blog of Alex's Lemonade Stand Foundation!

May 31, 2019
  • Maddie Davis, pictured above, has been battling pediatric ependymoma for over 5 years.
    Maddie Davis, pictured above, has been battling pediatric ependymoma for over 5 years.

Brain tumors are the deadliest form of childhood cancer, accounting for 30% of all cancer deaths each year.*  Sometimes just centimeters in size, these tumors present real treatment challenges because of their critical location in the brain. 

Even though the five-year survival rate is 74%**, the reality is that even children who survive 5 years after diagnosis are not necessarily cancer-free, and they may not survive 6 years. 

It sounds bleak—but it is a call to action. At Alex’s Lemonade Stand Foundation,... Read More

April 30, 2019
  • CCDL director, Casey Greene, PhD, believes the best is still to come. We interviewed Casey about the CCDL’s advancements and what exciting developments are ahead.
    The CCDL team regularly trains pediatric oncology researchers on how to use refine.bio to accelerate the pace of their research.
  • The CCDL Team (from L to R): Casey Greene, Candace Savonen, Kurt Wheeler, Ariel Rodriguez Romero, Deepa Prasad
    The CCDL Team (from L to R): Casey Greene, Candace Savonen, Kurt Wheeler, Ariel Rodriguez Romero, Deepa Prasad
  • refine.bio brings together decades of data sets for childhood cancer researchers to download and use for their own research.
    refine.bio brings together decades of data sets for childhood cancer researchers to download and use for their own research.

The Childhood Cancer Data Lab (CCDL) started with what seemed like a simple mission: develop tools to help pediatric oncology researchers access data, easily and quickly, in order to speed the work towards cures. 

Of course, creating those tools is anything but simple. 

Take refine.bio, the CCDL’s online repository of childhood cancer data. This tool took several decades' worth of publicly available childhood cancer data, all written in different languages, translated it, and placed it all in one... Read More

April 25, 2019
“Data is the lifeblood of science,” says Jaclyn Taroni, PhD, data scientist at the CCDL, “Data can better equip researchers to ask the really important scientific questions and to do so efficiently and robustly, as they work towards cures for childhood cancer.”

“Data is the lifeblood of science,” says Jaclyn Taroni, PhD, data scientist at the Childhood Cancer Data Lab.

When you think of childhood cancer research, you may imagine samples in test tubes and microscopes or a drug being tested in a clinic. And while childhood cancer research certainly happens in a biochem lab and in a clinic, it also happens inside the Childhood Cancer Data Lab (CCDL).  Funded by ALSF, the CCDL team is working to harness the power of big data and use it to cure childhood cancer. 

So what is big data? 

“Data is the lifeblood of science,” says Jaclyn Taroni, PhD, data... Read More

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