The Childhood Cancer Blog

The Childhood Cancer Blog

Welcome to The Childhood Cancer Blog
from Alex's Lemonade Stand Foundation!

June 5, 2020
  • Lakelynn was 3 years old when she was diagnosed with a rare sarcoma. Now, Lakelynn is 6 years old and her tumor is stable.
    Lakelynn was 3 years old when she was diagnosed with a rare sarcoma. Now, Lakelynn is 6 years old and her tumor is stable.
  • Edie was just 6 months old when she was diagnosed with neuroblastoma. Today, Edie is celebrating her 11th birthday, cancer-free.
    Edie was just 6 months old when she was diagnosed with neuroblastoma. Today, Edie is celebrating her 11th birthday, cancer-free.
  • Zach was 5 years old when he battled a rare form of anaplastic large cell lymphoma. Zach is now 15 years old and cancer-free.
    Zach was 5 years old when he battled a rare form of anaplastic large cell lymphoma. Zach is now 15 years old and cancer-free.
  • Taylor was 11 years old when osteosarcoma entered her life. Today, Taylor is 25 years old, cancer-free and celebrating her 1st year of marriage
    Taylor was 11 years old when osteosarcoma entered her life. Today, Taylor is 25 years old, cancer-free and celebrating her 1st year of marriage
  • Eden was 10 years old when doctors discovered a cancer so rare it had no name. Today, Eden is 15 years old and that rare cancer is gone.
    Eden was 10 years old when doctors discovered a cancer so rare it had no name. Today, Eden is 15 years old and that rare cancer is gone.

When Lakelynn was first diagnosed with a rare tumor, her family was given no options for treatment. Then genomic testing revealed that Lakelynn’s tumor harbored an NTRK gene fusion. Within 48 hours of learning more about Lakelynn’s diagnosis, the family headed to Boston to see Alex’s Lemonade Stand Foundation (ALSF)-funded researcher Dr. Steven Dubois.

Dr. Dubois was leading a trial for a drug called larotrectinib, which showed promise for kids like Lakelynn, who were battling cancer with the NTRK fusion. The trial worked. Lakelynn’s tumor shrunk and remains stable. Now, Lakelynn... Read More

June 5, 2020

The team at Alex’s Lemonade Stand Foundation continues to reflect upon our founder’s story of determination, as well as her legacy that lives on through our supporters everywhere. 

As our founder, Alex Scott, battled her own cancer, her drive to help others pushed her to raise $1 million for kids with cancer by the time she died at age 8. Her belief that you can always do better never wavered even in the harshest of circumstances.

Alex believed that everyone could join together to help change the world. And we still do, too.

For this Feel-Good Friday, we rounded up... Read More

May 30, 2020
  • sylvia
    Sylvia was diagnosed with medulloblastoma, when she was 6 years old.
  • frankie
    Frankie recently received his orange belt. He continues in treatment for pilomyxoid astrocytoma.
  • ryan
    Ryan, diagnosed at 22 months with ependymoma, is now 11 years old.
  • austin's family
    Austin was 15 years old when he lost his life to DIPG.

Frankie was just 6 years old when his parents rushed him to the emergency room. Within hours, Frankie was diagnosed with a brain tumor called pilomyxoid astrocytoma.  

Pediatric brain tumors account for about a quarter of all childhood cancer diagnoses. Each brain tumor diagnosis is different—there are hundreds of types and subtypes, each requiring a different treatment and with a different prognosis. For kids like Frankie, the day of diagnosis changes everything. Regular days at school turn into days at the clinic. Family vacations are postponed because of hospital stays and... Read More

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