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Alex's Lemonade Stand Foundation Blog

Welcome to the official blog of Alex's Lemonade Stand Foundation!


May 10, 2019

When my daughter Alex was first diagnosed with neuroblastoma, my gut instinct was to avoid other “cancer moms.” 

I did not want to be a part of their group and hear about what was happening with them. Not only was I absolutely devastated to be a “cancer mom,” I was hopeful I would not be one for long and that Alex would be cured. I dreaded getting entangled in other children’s battles. 

There was no way I... Read More

May 6, 2019
As a child, Jennifer was diagnosed with hepatoblastoma, a rare cancer that originates in the lobes of the liver. While in treatment, Jennifer’s nurse Pat Brophy, who was also ALSF Founder Alex Scott’s nurse, supported Jennifer and her parents through a scary, uncertain time. Pictured above, Jennifer and her nurse, Pat Brophy in 1995.   Today, Jennifer Toth is a pediatric oncology nurse at Children’s Hospital of Philadelphia, an ALSF Center of Excellence institution. She shared her story with us.

As a child, Jennifer was diagnosed with hepatoblastoma, a rare cancer that originates in the lobes of the liver. While in treatment, Jennifer’s nurse Pat Brophy, who was also ALSF Founder Alex Scott’s nurse, supported Jennifer and her parents through a scary, uncertain time. Pictured above, Jennifer and her nurse, Pat Brophy in 1995. 

Today, Jennifer Toth is a pediatric oncology nurse at Children’s... Read More

April 30, 2019
  • CCDL director, Casey Greene, PhD, believes the best is still to come. We interviewed Casey about the CCDL’s advancements and what exciting developments are ahead.
    The CCDL team regularly trains pediatric oncology researchers on how to use refine.bio to accelerate the pace of their research.
  • The CCDL Team (from L to R): Casey Greene, Candace Savonen, Kurt Wheeler, Ariel Rodriguez Romero, Deepa Prasad
    The CCDL Team (from L to R): Casey Greene, Candace Savonen, Kurt Wheeler, Ariel Rodriguez Romero, Deepa Prasad
  • refine.bio brings together decades of data sets for childhood cancer researchers to download and use for their own research.
    refine.bio brings together decades of data sets for childhood cancer researchers to download and use for their own research.

by Adam Paris

The Childhood Cancer Data Lab (CCDL) started with what seemed like a simple mission: develop tools to help pediatric oncology researchers access data, easily and quickly, in order to speed the work towards cures. 

Of course, creating those tools is anything but simple. 

Take refine.bio, the CCDL’s online repository of childhood cancer data. This tool took several decades' worth of publicly available childhood cancer data, all written in different languages, translated it, and... Read More

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