Childhood Cancer

There is an astonishing amount of information available through the Internet. Libraries from all over the world can be accessed, and you can download information in minutes from huge databases such as PubMed and Cancerlit. Exchanges between individuals occur through bulletin boards and discussion listservs. However, the large numbers of people using the Internet has spawned thousands of chat rooms, websites, and FAQs (frequently asked questions), which may or may not contain accurate information. You might want to adopt the motto, “Let the buyer beware.” It is wise to verify information prior to acting on it and to bring all questions or concerns you have to your healthcare provider.


Internet support groups (also called listservs) are free, email discussions about specific topics of interest. Each subscriber receives a copy of an email sent by any member of the group. Some active groups generate dozens of messages a day. If you subscribe to the “digest” mode, you will receive one email containing all the messages posted that day. The Association of Cancer Online Resources, Inc. (ACOR), a nonprofit organization, manages the best cancer-related Internet support groups. Some examples are PED-ONC, PED-ONC Survivors, ALL-KIDS, GVHD support group for people post-transplant, LT-survivors (long-term survivors), and BMT-TALK. To find a list of the groups, go to .