Childhood Cancer

Childhood Cancer Survivors

Appendix E. Childhood Cancer Guides (TM)

Questions Answered. Experiences Shared.

When your life is turned upside down, your need for information is great. You have to make critical medical decisions, often with what seems like little to go on. Plus, you have to break the news to family, quiet your own fears, help your ill child and your other children, figure out how you are going to pay for things, and sometimes get to work or put dinner on the table.

Childhood Cancer Guides provide authoritative information for the families and friends of children with cancer or survivors of childhood cancer. They cover all aspects of how these illnesses affect family life. In each book, there’s a mix of:

  • Medical information

    Dozens of experts on childhood cancer and survivorship contributed to these books to provide state-of-the-art information to help you weigh treatment options. Modern medicine has much to offer. When there are treatment controversies, we present differing points of view.

  • Practical information

    After making treatment decisions, life focuses on coping with treatment and any late effects that develop. We cover day-to-day practicalities, such as those you’d hear from a helpful nurse or a knowledgeable support group.

  • Emotional support

    It’s normal to have strong reactions to a condition that threatens your life or your child’s life. It’s normal that the whole family is affected. We cover issues such as the shock of diagnosis, living with uncertainty, and communicating with loved ones.

Each book contains stories from parents, children, and siblings—medical “frequent flyers” who share, in their own words, the lessons they have learned and what truly helped them cope.

We provide information online, including updated listings of some of the resources that are listed in our books. This is freely available for you to print out and share with others, as long as you retain the copyright notice on the printouts.