Childhood Cancer
Educational and legal support
The Disability Rights Education and Defense Fund
(800) 348-4232
This organization trains and educates people with disabilities and parents of children with disabilities about their rights under state and federal disability rights laws.
Federation for Children with Special Needs
(617) 236-7210
Federally funded organization with representation in every state. FCSN provides information about special education rights and laws, conferences, referrals for services, parent training workshops, publications, and advocacy information.
Job Accommodation Network (JAN)
(800) 526-7234
JAN facilitates the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members, and other interested parties with information about job accommodations, entrepreneurship, and related subjects.
Learning Disabilities Associaton of America (LDA)
(412) 341-1515
LDA serves parents, professionals, and individuals with learning disabilities; has local chapters; and provides educational materials.
National Center for Learning Disabilities
(888) 575-7373
This center offers extensive resources, referral services, and educational programs about learning disabilities. It also promotes public awareness and advocates for effective legislation to help people with learning disabilities.
U.S. Department of Justice ADA Information Line
(800) 514-0301 / TTY: (800) 514-0383
Staff members answer questions about the Americans with Disabilities Act (ADA), explain how to file a complaint, and provide dispute resolution.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Bone Sarcomas
- 3. Liver Cancers
- 4. Neuroblastoma
- 5. Retinoblastoma
- 6. Soft Tissue Sarcomas
- 7. Kidney Tumors
- 8. Telling Your Child and Others
- 9. Choosing a Treatment
- 10. Coping with Procedures
- 11. Forming a Partnership with the Medical Team
- 12. Hospitalization
- 13. Venous Catheters
- 14. Surgery
- 15. Chemotherapy
- 16. Common Side Effects of Treatment
- 17. Radiation Therapy
- 18. Stem Cell Transplantation
- 19. Siblings
- 20. Family and Friends
- 21. Communication and Behavior
- 22. School
- 23. Sources of Support
- 24. Nutrition
- 25. Medical and Financial Record-keeping
- 26. End of Treatment and Beyond
- 27. Recurrence
- 28. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups