Childhood Cancer
Solid tumor organizations (United States)
Children’s Neuroblastoma Cancer Foundation (CNCF)
(866) 671-2623
The CNCF is a national organization committed to finding a cure for neuroblastoma through research, education, awareness, and advocacy. CNCF holds an annual education conference for parents and funds research.
The Eye Cancer Foundation
(212) 832-8170
The foundation offers information about the diagnosis and treatment of eye cancers, including retinoblastoma.
Rhabdomyosarcoma Advocacy Group
This advocacy group works hand-in-hand with leading rhabdo researchers and clinicians from around the world. It offers information about treatments and research on rhabdomyosarcoma and a talk forum for members.
Sarcoma Foundation of America (SFA)
(301) 253-8687
The mission of the SFA is to advocate for sarcoma patients by funding research and increasing awareness about the disease. The organization raises money to privately fund grants for sarcoma researchers and conducts education and advocacy efforts on behalf of sarcoma patients.
Neuroblastoma Children’s Cancer Society
(800) 532-5162
The organization raises funds for neuroblastoma research and provides information to families of children with neuroblastoma.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Bone Sarcomas
- 3. Liver Cancers
- 4. Neuroblastoma
- 5. Retinoblastoma
- 6. Soft Tissue Sarcomas
- 7. Kidney Tumors
- 8. Telling Your Child and Others
- 9. Choosing a Treatment
- 10. Coping with Procedures
- 11. Forming a Partnership with the Medical Team
- 12. Hospitalization
- 13. Venous Catheters
- 14. Surgery
- 15. Chemotherapy
- 16. Common Side Effects of Treatment
- 17. Radiation Therapy
- 18. Stem Cell Transplantation
- 19. Siblings
- 20. Family and Friends
- 21. Communication and Behavior
- 22. School
- 23. Sources of Support
- 24. Nutrition
- 25. Medical and Financial Record-keeping
- 26. End of Treatment and Beyond
- 27. Recurrence
- 28. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups