Childhood Cancer

Childhood Cancer

How to use this book

While conducting research for this book, we were repeatedly told by parents to “write the truth.” Because the “truth” varies for each person, more than 140 parents, children with solid tumors, and their siblings share portions of their experiences. This book is full of these snapshots in time, some of which may be hard to read, especially by families of newly diagnosed children. Here are our suggestions for a positive way to use the information contained in this book:

•  Consider reading only the sections that apply to the present or the immediate future.

•  Realize that only a fraction of the problems that parents describe will affect your child. Every child is different; every child sails smoothly through some portions of treatment but encounters difficulties during others.

•  Take any concerns or questions that arise to your child’s oncologist and/or nurse practitioner for answers. The more you learn, the better you can advocate for your child.

•  Share this book with family and friends. Usually they desperately want to help and just don’t know how. This book not only explains the disease and treatments but also offers dozens of concrete suggestions for helpful things family and friends can do.

Best wishes for a smooth journey through treatment and a bright future for your entire family.