Childhood Cancer

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Beckwith-Wiedemann Syndrome

Beckwith-Wiedemann syndrome is a congenital growth disorder that cause large body size, large organs and other symptoms. It can increase a child’s risk of certain childhood cancers including Wilms’ tumor and hepatoblastoma.

Latest Beckwith-Wiedemann Syndrome grants

Jennifer Kalish, MD, PhD, Principal Investigator
University of Pennsylvania
Young Investigator Grants, Awarded 2013

Latest Beckwith-Wiedemann Syndrome blog posts

Last year, we shared the story of 14-year-old Eden Green, who loves to take photos and dance. Eden was in treatment for a form of childhood cancer so rare, that doctors did not have a clinical name for it. After 4 months of treatment on a... more
by Trish Adkins

For Eden, the trouble began when she was 10 years old. The trouble had a name: pain. It seemed normal at first—maybe a side effect from dancing or growing. But then it never went away and then, suddenly, Eden could not... more
Children with certain types of hard-to-treat childhood cancers just got another huge dose of hope. Last week, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a drug called Vitrakvi (also known as larotrectinib... more