Childhood Cancer

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All blog posts tagged with "Diffuse Intrinsic Pontine Glioma (DIPG)"

May 22, 2020

During May, we honor Brain Tumor Awareness Month, to raise awareness of childhood brain tumors and the significant need for more research that will lead to new, safer cures.
 
Brain and Central Nervous System (CNS) tumors... more

May 1, 2020

Brain tumors are the deadliest form of childhood cancer in the United States, accounting for 30% of all cancer deaths each year. Sometimes just... more

March 4, 2020

When Lilly faced surgery after relapsing, her family made the decision to donate extra tumor tissue to research instead of throwing it away. 

“We hope that Lilly’s... more

September 12, 2019

Every day, everywhere, children are diagnosed with cancer. Right now, children are in hospitals receiving frontline treatment following a diagnosis. Other children are beginning a clinical trial following a relapse. Still others face... more

July 3, 2019

Last year, we shared the story of 14-year-old Eden Green, who loves to take photos and dance. Eden was in treatment for a form of childhood cancer so rare, that doctors did not have a clinical name for it. After 4 months of... more

December 17, 2018

by Trish Adkins

For Eden, the trouble began when she was 10 years old. The trouble had a name: pain. It seemed normal at first—maybe a side effect from dancing or growing. But then it never went away and then, suddenly... more

December 14, 2018

Children with certain types of hard-to-treat childhood cancers just got another huge dose of hope. Last week, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a drug called... more

December 3, 2018

by Adam Paris

Eden is a 13 year old who loves to shoot photos and smile for her own snapshots. After being unable to walk or practice her favorite activity, dancing, for nearly a year, she was... more

October 16, 2018

Alex’s Lemonade Stand Foundation (ALSF) has declared a war on childhood cancer.

Every day of... more

July 18, 2018

by Trish Adkins

When a child receives the diagnosis of diffuse intrinsic pontine glioma (DIPG), the diagnosis comes with an end date. 

Thus... more

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