From now until September 30, 2016: Join our TeamBWS Million Mile Run/Walk/Ride team. You can donate funds or miles.
Click here to join/donate: www.alexslemonade.org/mypage/TeamBWS
The Beckwith-Wiedemann Syndrome Fund at ALSF is committed to fund research into Beckwith-Wiedemann Syndrome (BWS) and related disorders.
This research includes developing and studying a patient registry and repository, developing and studying mouse and human cell-based models of BWS, and understanding the genetic and epigenetic changes that lead to BWS and related disorders.
All donations to the Beckwith-Wiedemann Syndrome Fund are restricted to research and advances in BWS and related disorders. Dr. Jenn Kalish, a leading researcher in the BWS community will lead the Scientific Advisory Committee for the fund - helping to set priorities and strategies for funding the most impactful BWS research. Read about Dr. Kalish's research recently funded by ALSF.
About Beckwith-Wiedemann Syndrome (BWS): BWS is a condition that affects many parts of the body. Children with Beckwith-Wiedemann syndrome are at an increased risk of developing several types of cancerous and noncancerous tumors, particularly a form of kidney cancer called Wilms tumor and a form of liver cancer called hepatoblastoma. Tumors develop in about 5-10 percent of children with BWS.
You can help fund research into BWS by donating or by holding a lemonade stand/fundraiser to benefit the Beckwith-Wiedemann ALSF Fund!
Fundraisers with Recent Donations
|Fundraising Page Name||Location||Amount|
|Our BWS Friends Fundraiser||Morristown, NJ||$23,130|
|Arboretum Tea Time Supporting BWS Research||Dallas, TX||$4,791|
|Penn Alexander School's Lemonade Stand||Philadelphia, PA||$640|
|Beckwith-Wiedemann Syndrome Awareness Day||Drexel Hill, PA||$0|