Beckwith-Wiedemann Syndrome is a rare genetic disorder. For certain types of BWS, up to 25% of children will develop cancer, most commonly liver and kidney cancer. We are participating in Alex's Million Mile to help move us closer to finding a cure for all children with cancer!

Funds from Team BWS 2016 supported the following:

Deciphering BWS conference at the Children’s Hospital of Philadelphia (CHOP) July 21-23, 2017. Families from across the US and the world gathered to hear updates on clinical care and research from physicians and scientists at CHOP and University of Pennsylvania. http://blog.research.chop.edu/chop-hosts-deciphering-beckwith-wiedemann-syndrome-conference/ Stay tuned for details about the next Deciphering BWS conference at Children’s Hospital of Philadelphia to be held July 19-21, 2019.

The BWS educational coloring book sponsored by ALSF and Children’s Hospital of Philadelphia www.chop.edu/BWScoloringbook was translated into Spanish and Italian.

BWS Registry http://prezi.com/gkgsyym47rox/?utm_campaign=share&utm_medium=copy has enrolled hundreds of families from across the US and around the world. We have connected families with local specialists and with nearby families for support. If you are interested in learning more or joining the registry, email us at [email protected]

New BWS tumor screening guidelines: http://clincancerres.aacrjournals.org/content/23/13/e115

2017 Team Funds will support the BWS Registry and new educational material to help improve clinical care for children with BWS

Find out more about our BWS Heroes here: https://www.alexslemonade.org/campaign/beckwith-wiedemann-syndrome-fund-alsf