The Beckwith-Wiedemann Syndrome Fund at ALSF is committed to fund research into Beckwith-Wiedemann Syndrome (BWS) and related disorders.
This research includes developing and studying a patient registry and repository, developing and studying mouse and human cell-based models of BWS, and understanding the genetic and epigenetic changes that lead to BWS and related disorders.
All donations to the Beckwith-Wiedemann Syndrome Fund are restricted to research and advances in BWS and related disorders. Dr. Jenn Kalish, a leading researcher in the BWS community will lead the Scientific Advisory Committee for the fund, helping to set priorities and strategies for funding the most impactful BWS research. Read about Dr. Kalish's research recently funded by ALSF.
About Beckwith-Wiedemann Syndrome (BWS): BWS is a condition that affects many parts of the body. Children with Beckwith-Wiedemann syndrome are at an increased risk of developing several types of cancerous and noncancerous tumors, particularly a form of kidney cancer called Wilms tumor and a form of liver cancer called hepatoblastoma. Tumors develop in about 5-10 percent of children with BWS.
You can help fund research into BWS by donating or by holding a lemonade stand/fundraiser to benefit the Beckwith-Wiedemann ALSF Fund!
Fundraisers with Recent Donations
|Fundraising Page Name||Location||Amount|
|Gavriela's Birthday||Philadelphia, PA||$401|
|Beckwith-Wiedemann Syndrome Awareness Day||Drexel Hill, PA||$100|
|Our BWS Friends Fundraiser||Morristown, NJ||$23,130|
|Arboretum Tea Time Supporting BWS Research||Dallas, TX||$4,791|
|Penn Alexander School's Lemonade Stand||Philadelphia, PA||$640|