Team Captain: Michelle L.

Fundraiser Details

 

Share this page

Austin passed away in the arms of his mommy and daddy at 2:12 am.  He was one tough little dude and gave it all he had! 

Austin came home tonight. Compassionate Hospice will take over his care at home.  Not sure how much time he has left, the family was told a few weeks to a few months.  Please keep them all in your thoughts and prayers!

I apologize, I updated this Sunday from my phone but apparently it did not save.

Saturday evening Austin began having a major seizure.  He was transported via 911 to CMC in Toms River.  From there he was airlifted to CHOP.  All bloodwork and CAT scan came back normal.  However, he had a MRI on Monday which showed that treatment is not working and his cancer is too aggressive.  The Drs feel treatment is only buying him time at this point.  His family is planning on bringing him home, making him comfortable and helping him enjoy what time he has left. 

PLEASE keep Austin and his entire family in your thoughts and prayers.  They could use all the support they can get!

Austin has returned to CHOP for a day trip...He will be doing a chemo treatment and needs platelets.

Austin has been busy living his life, going in the pool, went to his 1st Phillies game, The Zoo, rides on the quad, and many other things.  Austin still has a long road a head, but is able to enjoy doing fun things! 

 Another day of chemo yesterday completed...Austin did great. He needed a blood transfusion though so he ended up being there a lot longer than he wanted to. But he's home hanging out with his family!

If all goes well tonight and in the morning, Austin will be released!  He did really well with this round of chemo, only getting sick the first night.  He's making progress!!

Austin returned to CHOP on July 24 for his next round of chemo.  He should only be there for a few days!

Austin goes for kidney function testing tomorrow morning, then hearing test in the afternoon.  Then Tuesday checks back in for another round of chemo.  He's had a good couple of days. He got to play on his new John Deere tractor that he got through a "wish" program at CHOP.  He was full of smiles-I posted a pic!! 

Official MRI results-chemo is working!  Another round to start next Wednesday.  Keep those positive thoughts and prayers coming, they're working!

Austin's finally home!  Feeling a little better, still has the NG tube.  MRI today and preliminary results look promising...looks like the cancer is finally shrinking a little!  GREAT NEWS!!