The Childhood Cancer Blog
The Childhood Cancer Blog
August 1, 2020
Today is the rare collision of the day our daughter Alex passed away at the age of 8 and the start of Lemonade Days.
There are dozens of sayings related to rare occurrences — catchphrases like “one in a million” or “once in a blue moon” or “lightning never strikes the same spot twice” or “once in a lifetime.”
Our daughter Alex had a rare cancer with neuroblastoma — not one in a million — but pretty rare. And she was a young trailblazer, who at the age of 4, ignited a movement to cure childhood cancer with lemonade stands. As her mother, I know that knowing Alex was a once... Read More
June 12, 2020
Alex painting her stand in 2004.
Liz and Alex at Alex's Original in 2004.
Since the beginning, the community always came out for Alex.
Alex with her Dad, Jay.
No one knew that Alex's first stand would kick off a movement to cure childhood cancer.
This weekend, we should have been holding our stand in Alex's memory in our neighborhood.
For 20 years, this has been our annual family tradition. Of course, the first year, in 2000, we did not know it would be our annual tradition, or that her little front yard stand would become her legacy -- one that has raised more than $200 million to find a cure for other kids with cancer.
There was so much we did not know then: like how many more years Alex would fight; that her treatment would take our family to Philadelphia where we would raise our kids; that her story would... Read More
March 20, 2020
Isolation isn't a new experience for me or my wife Liz. Like other childhood cancer families, isolation is familiar and necessary.
Almost exactly 20 years ago, our family willingly went into isolation for one month.
A few months before our isolation, we were told that our daughter Alex was dying. Alex was fighting a childhood cancer called neuroblastoma. Her cancer spread as high as her neck and as low as the bones in her left foot. Doctors told us she had no hope to survive.
We didn’t... Read More
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