Below you can find resources including sample captions and images to share your involvement and help spread awareness on your social media. Please feel free to customize the captions to reflect your personal commitment to helping raise awareness for kids diagnosed with brain tumors.
Follow Alex's Lemonade Stand Foundation (ALSF)
Hashtag: #BrainTumorAwareness
Go Gray in May Ribbon
SHARE to raise awareness for children with brain tumors for #BrainTumorAwareness Month!
Brain and spinal cord tumors, collectively known as central nervous system tumors, are the most common solid tumors in children—and the most common cause of cancer deaths in children, too. Here are the facts:
- Over 4,800 children are diagnosed with a brain tumor each year in the United States (this includes malignant and low-grade tumors)
- Over 500 children die each year from a brain tumor
- Treatments can be devastating, leading to significant long-term side effects that impair mobility and impact performance in school
- Research is consistently underfunded, but Alex’s Lemonade Stand Foundation is working to fill the gap and has funded more than 300 brain tumor research grants, helping change the future for children with brain tumors
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Brain tumors are the deadliest type of childhood cancer.
Did you know that a decade ago, brain tumors became the leading cause of childhood cancer death while survival rates for the most common forms of leukemia improved to nearly 90%? Treatment options for childhood brain tumors have advanced, but survival rates remain below 10% for some fast-growing high-grade tumors.
This is why research is so important. If progress is possible in leukemia, it is possible in brain tumors. And you can help.
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Pediatric brain tumor research remains underfunded.
As is true for all types of childhood cancer, pediatric brain tumors receive significantly less federal and industry research funding than adult cancers.
For example, there are only 19 late-phase clinical trials open in the U.S. for kids with brain tumors—roughly half the number available for adults.
You can help change that.
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ALSF has funded over 300 pediatric brain tumor projects.
Over the past 20 years, Alex’s Lemonade Stand Foundation (ALSF)’s investment in pediatric brain tumor research has led to meaningful progress and incredible survival stories. Like Brynn, who was treated by ALSF-funded researcher Dr. Ted Johnson. Today, she is thriving after a clinical trial saved her life.
ALSF has funded more than 300 brain tumor projects since 2000, spanning multiple tumor types and treatment approaches, all aimed at improving outcomes and finding cures for more children.
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Every day, a child in the U.S. will die of a brain tumor.
In 2023, 523 children in the United States died from a malignant brain tumor—more than one child every day.
According to The Childhood Cancer Report 2026, if current trends continue, more than 5,000 children will be lost over a decade.
Investing in research can change this trajectory and improve survival for more children.
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The average age of diagnosis for a pediatric brain tumor is 8 years old.
At 8 years old, children should be enjoying the third grade—not stuck in the oncology clinic.
For adults, the average age of diagnosis with a brain tumor is 62 years old. For children with brain tumors, treatment often comes during critical stages of development and can impact motor skills, cognition, and long-term quality of life.
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Tips for Using Social Media Tools for Your Event and Fundraising
Facebook Tools
How to create a Facebook fundraiser:
- Log into your Facebook account on your desktop or phone
- If you are using your desktop, press the create “+” button in the top right corner; select “Fundraiser” at the bottom of the drop down menu.
- If you are on your phone, tap the ☰ button and tap “Fundraisers.” Then tap “+ “Create Fundraiser”
- Facebook will ask who you are raising money for; select “Nonprofit.”
- Type “Alex’s Lemonade Stand Foundation” into the search bar; select ALSF.
- Customize your fundraiser:
- Choose a fundraising goal
- Select the date your fundraiser will end
- Choose a title and add a description
- Click “Create”
Please note: Facebook Fundraisers do not automatically sync with your personal ALSF fundraising page for Lemonade Days. Therefore, please track the names, donation amounts and dates that anyone donates to your fundraiser and notify your ALSF stand or event coach so the donation(s) can be allocated correctly. Please allow some time for processing to see the donations on your personal fundraising page.
To create a public Facebook event for your stand or event:
- Open the Facebook app on your phone or in your web browser on your computer.
- From your News Feed, click “Events.”
- Click + “Create Event.”
- Select either "Online" or "In Person." Depending on the type of event you are hosting. Anyone will be able to see your event and search for it, even if you aren't friends. Once you've created a public event, you won't be able to change it to private later. You can, however, change your event to "Online" or "In Person" later if your event plans change.
- Fill in the event name, location, date, time and description.
- Type and select keywords about your public event so it can be better recommended to people who are interested in that topic (example: Food festival).
- Choose who can edit and post in your event and then click “Create.” You'll be taken to your event where you can invite guests, add a cover photo or video, share posts and edit event details.
How to start a live broadcast on Facebook:
- Open the Facebook app on your phone.
- Click “What's on your mind, [Name]?” at the top of your News Feed.
- Click the “…” button then click Live Video.
- Write something about your live video.
- Click “Go Live” in the bottom left.
How to add a donate button to your Facebook post:
- Open the Facebook app on your phone or in your web browser on your computer.
- Click “What's on your mind, [Name]?” at the top of your Facebook News Feed.
- Click the “...” button then select “Raise Money.”
- Search for Alex’s Lemonade Stand Foundation in the search tab that appears and select it as the charity you want to support from the menu.
- Write a post about your fundraiser or why you’re supporting ALSF and click “Post.”
- Once your post is published, you'll see a donate button on your post where your friends can make donations directly to ALSF.
Instagram Tools
How to add an Instagram donation sticker to your Instagram story:
- Open your Instagram app.
- Tap the plus icon at the top of the page and tap "Story."
- Take or upload a photo or video.
- Tap the sticker icon at the top of your screen.
- Select the donation sticker.
- Search for and select “Alex's Lemonade Stand Foundation.”
- Customize your fundraiser using Stories creative tools.
- Tap the "Your Story" button to add the post to your Instagram story.
How to start a live broadcast on Instagram:
- Open the Instagram app on your phone.
- Tap the plus icon at the top of your feed or swipe right anywhere in your Feed, then scroll to Live at the bottom.
- To add a title, tap “Title” on the left and enter a title, then tap “Add Title.”
- Tap the red icon at the bottom. The number of viewers appears at the top of the screen and comments appear at the bottom.
- You can add a comment and include information about your stand or fundraiser by tapping “Comment” at the bottom of the screen.
- Tap a comment and tap “Pin Comment” to pin it so that viewers can see it more easily.
- When you're done, tap “End” in the top right then tap to confirm. From there, you can tap in the top left to save it to your camera roll, or share it to your IGTV feed.
