The RUNX1 Research Program is a non-profit organization committed to finding a cure for RUNX1-FPD and to support patients in the RUNX1 community by providing a forum in which to help connect, inform and educate patients on the disorder. In addition to providing grants for relevant research projects, the program hopes to build public awareness, educating both patients and healthcare providers on the latest research regarding the disorder.

RUNX1 FPD is a hereditary blood disorder which predisposes an individual to acquiring leukemia in his or her lifetime. The disorder carries a 50 percent lifetime risk of progressing to leukemia through the acquisition of additional mutations in other genes.