Childhood Cancer Heroes

You are here

Casen Tonstad

  • Hepatoblastoma

Click the images to see them larger above!

Learn more about

Get the facts about Hepatoblastoma and how our research projects are making a difference.

Learn More »

Casen has a big personality and loves dinosaurs, dogs and playing outside. Before his diagnosis, he had a stomach bug that he couldn’t seem to kick. His parents took him to the doctor, who said to come back in a few days for a weight check-up. That was when Casen’s doctor felt a mass in his abdomen.

He was immediately referred to Prisma Health Children's Hospital in South Carolina. While there, Casen was diagnosed with hepatoblastoma, and began a seven-hour surgery followed by two rounds of chemotherapy.

Today, Casen has no evidence of disease (NED) and is a happy 2 year old!

Casen’s parents hope that he continues to have good health and achieve all his dreams. His strength impacted his mom, Jessica, immensely. “He taught me more about myself than I thought was possible,” she said. “He taught me the meaning of life.”

Jessica’s advice for others who may also be experiencing a childhood cancer diagnosis is to take things day by day while understanding some days will be harder than others. But as ambassadors for Alex’s Lemonade Stand Foundation (ALSF), she and Casen know there is hope. To them, ALSF reminds them that there are people out there making a real difference in the lives of those facing childhood cancer.

Information provided by Casen’s mom, Jessica Tonstad
Updated April, 2020

Donate in Honor of Casen Today!

Your donation helps to fund critically-needed research to find better treatments and cures for children with cancer.

Childhood Cancer Heroes

More Heroes

Emma is a beautiful 2 year old girl born with an unfortunate complication: Beckwith-Wiedemann Syndrome. This rare genetic disorder comes with a statistically higher risk of developing cancer. Emma is screened regularly, getting the best care she can.
Makenzie is a bright 7-year-old fashionista who loves dancing and music. When she was 20 months old she received a bone marrow transplant to treat her severe combined immunodeficiency. A year later, she found out the donor had been diagnosed with cancer.
Strong doesn't even begin to define Jake. He's fought ependymoma since 2012, facing several complications and obstacles along the way. Luckily, Jake qualified for a clinical trial that has helped keep his cancer stable.
dj with his cards