Childhood Cancer Heroes

You are here

Declan Roberts

  • Rhabdomyosarcoma

Click the images to see them larger above!

Learn more about

Get the facts about Rhabdomyosarcoma and how our research projects are making a difference.

Learn More »

In the winter of 2011, Declan experienced repeated headaches and vomiting. On Valentine's Day 2011, after multiple scans, numerous tests, and his first brain surgery, Declan was diagnosed with Primary CNS (Central Nervous System) Rhabdomyosarcoma. CANCER. Our world stopped for only a moment. Long enough to take a deep breath, ask questions, get multiple 'second' opinions, and then work together with Declan and his care givers at AI duPont Hospital for Children in Wilmington, Delaware, to plan out how we could best help Declan fight his disease.

Pediatric Cancer isn't pretty. And the day-to-day routine of living with pediatric cancer would cripple most adults. Three brain surgeries, three port replacement surgeries, and months spent living in the hospital away from his two younger brothers was just part of Declan's challenge. He also tolerated more than 30 weeks of a very aggressive chemotherapy treatment plan, all while smiling, laughing, playing, and spreading his infectious joy all around him. When talking about how even heroes have bad days, Declan's response was "not me!" Even when, eleven months after the initial diagnosis, the cancer was found to have passed into his brain, Declan's main concern was that we forgot to sign him up for soccer class (which we did that afternoon!). Declan continued to fight with a passion far greater than we could have ever imagined.

Declan fought hard for -- and earned -- his angel wings on February 27th of this year. Every day is agony without him here in our arms. But as his parents, brothers, family, and friends, we continue to stand in awe of our HERO. It is amazing how much a parent can learn from their child about grace and perseverance, and how much Declan's infectious positive attitude has changed the lives of so many. Through his courage, contagious smile, uplifting personality, and his amazing outlook on life, Declan inspired, and continues to inspire, those who knew him and those who simply knew of him.

Hero Declan’s quote: “There are three things I can call stupid: Stupid cancer! Stupid medicine (YUCK)! Stupid shots!"

Read about the Declan Roberts Full of Goodness Fund for Rhabdomyosarcoma Research and donate to the fund.

Written by Megan & Bill Roberts, Declan’s Parents
Updated: Nov 2012

Next Hero

Donate in Honor of Declan Today!

Your donation helps to fund critically-needed research to find better treatments and cures for children with cancer.

Childhood Cancer Heroes

More Heroes

Despite never knowing Alex Scott, Caroline has traveled a similar path. Today, she loves selling lemonade to help other kids with cancer like her. After a family vacation, Caroline was diagnosed with acute lymphoblastic leukemia and began her fight.
Gabby loves animals, taking photos and making jewelry. Being stubborn and feisty, she wasn't going to let an osteosarcoma diagnosis get in the way of her dreams. During her fight, she has had her knee and part of her femur replaced with titanium.