Childhood Cancer Heroes

You are here

Jacob Long

  • Ewing Sarcoma
jacob hero photo

Click the images to see them larger above!

Learn more about
Ewing Sarcoma

Get the facts about Ewing Sarcoma and how our research projects are making a difference.

Learn More »

Jacob is a kid who knows how to keep his chin up. At 3 years old, he’s shown a lifetime’s worth of courage battling Ewing sarcoma.

One night, Jacob climbed out of his crib and fell on his left arm. The next day he was experiencing neck pain, but a trip to Wolfson’s Urgent Care suggested he had nothing more than a pulled muscle. The pain persisted, but again, the emergency room X-rays showed nothing out of the ordinary. It wasn’t until he stopped wanting to use both arms that the pediatrician sent them for a CT scan. This time, they found a mass in his neck, and Jacob was diagnosed with cancer.

The mass was putting pressure on his nerves, causing him to lose function in his arms. UF Health Pediatric Neurosurgery performed a biopsy and reduction, but with half the tumor wrapped around his spinal cord, they could only extract 40-50% of what was visible. They removed two vertebrae in his neck, and Jacob’s been in an Aspen neck brace ever since. Thankfully, part of the tumor liquified, meaning some of the cancer cells miraculously began dying off.

Jacob received chemotherapy every two weeks and finished six weeks of proton radiation in March 2020. But with COVID-19 safety restrictions in place at the hospital, only one parent could accompany him during these treatments. His compromised immune system meant their family had to be extra careful in quarantine. They often needed to have items delivered and accommodations made for Jacob’s sister, Anna, when she couldn’t visit him in the hospital.

It was hard for Jacob without his team there to cheer him on, but he responded to treatment like a champ, concluding chemo in July 2020 and receiving scans every three months. Throughout their journey, Jacob’s mom said Alex’s Lemonade Stand Foundation has been a “shining light in the darkest time of our lives.” Today, Jacob is out of his neck brace and in remission, and his whole family is so proud of how far he’s come!

Information provided by Sarah Barfield Riggs, Jacob's mom

Updated June 2021

Next Hero

Donate in Honor of Jacob Today!

Your donation helps to fund critically-needed research to find better treatments and cures for children with cancer.

Childhood Cancer Heroes

More Heroes

When Atlas was 8 months old, he fractured his arm. Upon further examination, doctors found that he had a tumor that was eating away at his wrist bones. His left arm below the elbow was amputated, but then a tumor was discovered next to his heart.
Despite the difficulties she has faced because of cancer, baby Kens is always smiling. She was diagnosed with a glioma before she was even 7 months old and is starting the chemotherapy she will have to take for the rest of her life unless a cure is found!
Stryder is just a big love bug, forever smiling even on his hardest days! When he was 2 years old, he stopped eating, and eventually stopped walking too. Doctors found his abdomen was full of tumors, and today he is starting new treatment.
As a 2-year-old, Everly has the most vibrant and kind personality her mom has ever known. Everly was diagnosed with stage 4 neuroblastoma two days before Christmas 2022 and has been in treatment ever since.