Zackary Adamsky was born on October 14, 2005. In 2006 he was diagnosed with Costello Syndrome, which is a multiple congenital malformation syndrome that has only been reported in about 300 people around the world.  The gene that mutates in Costello Syndrome is the H-Ras gene which is a cancer gene.  Zackary was diagnosed with Rhabdomyosarcoma of his abdomen and lung on May 9, 2007.  Because of the complexity of Costello Syndrome, Zackary suffered many surgeries and other life threatening illnesses beside the cancer, such as Hypertrophic cardiomyopathy, 2 brain bleeds, 2 broken femurs, a tracheostomy and relied on a ventilator to help him breath.  Zackary spent a year and a half at AI duPont Hospital for Children, only going home for a total of 3 weeks.  Zackary endured so much pain and suffering; he was a very strong little boy who had big brown eyes and a beautiful smile.  Everyone who took care of Zackary instantly fell in love with him and was inspired by his will to live.  Zackary relapsed in August 2008 and became an angel on September 29, 2008.

Written by: Andrea Adamsky, Zackary's Mother
Posted: 01/09