The Childhood Cancer Blog

The Childhood Cancer Blog

Welcome to The Childhood Cancer Blog
from Alex's Lemonade Stand Foundation!

July 23, 2021

Dr. Heinrich Kovar was a young student studying a rare cancer when the unthinkable happened. His brother was diagnosed with that same rare cancer: 

Ewing sarcoma.

As Dr. Kovar’s brother was treated, doctors tried to give his brother hope by telling him that researchers were working to find cures for his cancer.

But for his brother, that work would not be fast enough. When he passed away, Dr. Kovar was left with a mission: find cures for pediatric sarcomas.

“If I would have a... Read More

July 15, 2021
  • Lakelynn was 3 years old when she was diagnosed with a rare, inoperable tumor in her arm.
    Lakelynn was 3 years old when she was diagnosed with a rare, inoperable tumor in her arm.
  • A month after his first birthday, Francisco was diagnosed with stage II embryonal rhabdomyosarcoma
    A month after his first birthday, Francisco was diagnosed with stage II embryonal rhabdomyosarcoma
  • Raymeer battled synovial sarcoma. Last year, he graduated kindergarten.
    Raymeer battled synovial sarcoma. Last year, he graduated kindergarten.
  • Just before her fourth birthday, Kaela was diagnosed with osteosarcoma and began treatment in 2007.
    Just before her fourth birthday, Kaela was diagnosed with osteosarcoma and began treatment in 2007.
  • July is Sarcoma Awareness Month.
    July is Sarcoma Awareness Month.

July is more than sweltering summer days and backyard barbeques; to many, it’s a month that honors those battling sarcomas – a disease that represents 15% of childhood cancer diagnoses. While the five-year survival rate for all types of childhood cancer is 86%, the average for the three most common sarcomas ranges from 65-69%. These cure rates lag behind many other kinds of pediatric cancers.

This month, Alex’s Lemonade Stand Foundation (ALSF)... Read More

July 8, 2021
  • Declan with his brothers Tommy and Brendan
    Declan with his brothers Tommy and Brendan
  • July is Sarcoma Awareness Month.
    July is Sarcoma Awareness Month.

When Declan Roberts was 3 years old, he told his mom, Megan:

“There are three things I can call stupid: Stupid cancer! Stupid medicine (YUCK)! Stupid shots!” 

It was 2011 and Declan was already battling primary central nervous system (CNS) rhabdomyosarcoma, a type of pediatric sarcoma. Rhabdomyosarcoma arises in the soft tissues of the body. While it accounts for about 3% of all pediatric cancer diagnoses, Declan’s rhabdomyosarcoma was found in his CNS, which is extremely rare.

Declan began treatment — three brain surgeries, 30 weeks of intense chemotherapy and... Read More

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