Screen to Intervene: A Family-Centered Approach to Identifying and Communicating Family Psychosocial Risk and Developing Evidence Based Clinical Pathways in Hematopoietic Stem Cell Transplantation
The delivery of psychosocial care to youth with cancer and their families lags behind existing scientific knowledge about the challenges experienced by families. While evidence-based intervention approaches are available, they are not offered in a systematic manner.
The goal of this project is to validate a brief parent report screener of families with psychosocial risk and integrate the families in the development of clinical pathways of care for this high risk population. In this project the Psychosocial Assessment Tool (PAT) will be used with patients undergoing hematopoietic stem cell transplantation (HSCT). The parents/caregivers of 200 youth initiating HSCT will complete the PAT and measures for validating the PAT-HSCT, using a tablet computer, at three pediatric cancer centers -- A.I. duPont Hospital for Children, the University of Alabama Birmingham and Cincinnati Children's Hospital Medical Center. Assuring that the feedback about psychosocial risk is shared with families is the second goal. As a final goal, 12 families will participate in structured interviews in order to characterize how levels of risk can be translated into interventions.
The data will be translated into clinical pathways that will be discussed with the 12 families and HSCT providers via a videoconference platform. Using all the data collected, three clinical pathways will be generated that can be made available for use in HSCT. At the conclusion of the project, a brief parent report screener of psychosocial risk will be available for families of children undergoing HSCT. Clinical pathways to accelerate the delivery of psychosocial care, matched to family risk, will be ready for implementation.