Childhood Cancer Heroes

You are here

Adaly Felipe

  • Atypical Teratoid/Rhabdoid Tumor (AT/RT)

Click the images to see them larger above!

Learn more about
Atypical Teratoid/Rhabdoid Tumor (AT/RT)

Get the facts about Atypical Teratoid/Rhabdoid Tumor (AT/RT) and how our research projects are making a difference.

Learn More »

Adaly Felipe is too young to fully understand that she may have possible hearing loss from chemotherapy or even why she receives treatment for cancer, but what this sweet and feisty 2 year old does know for sure is that she is surrounded by a lot of love from her parents and older sister. After being diagnosed with atypical teratoid rhabdoid tumor (AT/RT), a fast-growing tumor of the central nervous system, Adaly’s family refused to let the disease define their little girl.

“We were told the tumor could not be removed,” said Nancy, Adaly’s mom. “The doctors wanted to put Adaly on hospice during proton therapy.” Nancy sensed it just wasn’t the time and mother’s intuition proved she was right – Adaly is now on maintenance chemo after having completed proton therapy and three clinical trials which helped to very slowly shrink her tumor.

Nancy admits it hasn’t been easy though. “When Adaly first started getting sick, she wanted to be carried all the time,” which was a setback since she was progressing on learning how to walk. “She also went from being a good eater to having trouble tolerating even two ounces of formula and spiting up often,” said Nancy who knew something was wrong. “That’s when the doctor did a CT scan and found a tumor in her cerebellum.”

Currently, Adaly receives her nutrition from a feeding tube because she has lost the ability to eat or suck a bottle. She also has a port so that she can receive daily chemo from home but continues to make the 45-minute drive to Atlanta for infusions every few weeks. “Making the trip for infusions has been harder since the pandemic began,” said Nancy. “Now only one parent can go with Adaly and we are very grateful to ALSF for supporting us with gas and groceries which has been a big help.”

The Felipe family is doing their best to fight Adaly’s cancer during an unprecedented time and are happy they can continue to do her favorite activities like playing outside with her dogs. “This disease has had an impact on Adaly’s coordination,” said Nancy. “But she won’t let that stop her.” You can view all updates about Adaly on her Facebook group.

Information provided by Nancy, Adaly’s mom

Updated June 2020

Donate in Honor of Adaly Today!

Your donation helps to fund critically-needed research to find better treatments and cures for children with cancer.

Childhood Cancer Heroes

More Heroes

Eva is a headstrong, fun-loving, 4-year-old princess. Her older brother, Eli, thinks his little sister is, “super-duper brave, courageous and fearless,” as she fights stage III Wilms tumor. And her battle hasn't been easy.
Ever since his cancer diagnosis in 2019, Brett has fought hard and done everything with a smile. He's take his experience in stride and even began the Teens4Cures fundraiser that has helped spread awareness of who childhood cancer affects: everybody.
5-year-old Ian is an avid sports fan. Even amid his treatments for neuroblastoma, his doctors were shocked by how active Ian was. He was diagnosed at 3 days old but has been fighting hard despite his age, and today his cancer is stable.
Even without the ability to walk or talk, 15-year-old Sydni’s undeniably vibrant personality shines through her animated smile and deep belly laugh. Sydnie's doctor found the markings of the largest brain tumor they'd ever seen in a 2-month-old infant..