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In May 2007, Lily was diagnosed with a regular ependymoma brain tumor at The Children's Hospital of Philadelphia (CHOP). She was 14 months old. In the weeks leading up to her diagnosis, Lily was throwing up sporadically, began to lose her balance and stopped crawling.
At CHOP, Lily had a full tumor resection. Because of this complete removal, her tumor type and other factors, we were sent to MD Anderson in Houston, TX for 6 weeks of proton radiation therapy. Lily has had clean MRIs since August 2007. Today, Lily is a sassy and energetic, almost 9 year old.
The brain tumor left Lily unable to walk, but today Lily walks, runs and dances (ballet and hip-hop!). She continues to work hard at further developing her balance, strength and coordination. Lily still receives physical and occupational therapy each week in addition to therapeutic horseback riding lessons. When Lily grows up she wants to be a fashion designer, a songwriter and an artist.
Watching Lily grow and continue to heal is an inspiration. She has taught us that when you fall, you always stand back up; to always love with our whole heart; and that miracles do happen. Lily is living proof.
Written by Trish Adkins, Lily’s proud mom
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