Childhood Cancer

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Enhancing Communication about Sexual and Reproductive Health between Oncology Clinicians and Adolescent and Young Adults

Connecticut Children’s Medical Center
Dr. Natasha Frederick, PhD
Grant Type: 
Psychosocial Launch Grant
Year Awarded: 
Type of Childhood Cancer: 
General Pediatric Cancer
Project Description: 

Research studies show that adolescent and young adult cancer patients (AYAs) want better communication about sexual and reproductive health (SRH) issues with their oncology clinicians. Unfortunately, many clinicians do not recognize the importance of these issues and rarely talk about them with AYAs during treatment and in survivorship. Our past research shows that clinicians do not discuss SRH because they lack knowledge about and experience with the types of SRH issues AYAs may face during cancer and they are not sure how best to carry out these conversations. To help address these issues, we developed a SRH communication intervention that includes three parts: 1) a brief education module for clinicians to learn about the important SRH-related issues that AYAs may encounter during cancer treatment, 2) a conversation guide to help clinicians know how to start SRH conversations and what to say, and 3) a pre-visit checklist that lets AYAs pick from a list of possible questions or concerns that they may have about SRH to help their clinician know what they want to talk about before they meet.

Project Goal:
Our goals for this research are to ask AYAs and clinicians for feedback on each part of the intervention in order to make improvements and then to pilot test the intervention in the outpatient clinic setting to better understand the challenges of putting the intervention into practice. Future research will investigate the impact of this intervention on improving SRH conversations between AYAs and clinicians, and how better communication impacts AYA health and quality of life.

Co-funded by: 
Tap Cancer Out