ALSF Fund: Closer to the Cure Fund

Cooper Ripley Martin

A Medulloblastoma Research Fund

On December 9, 2016, when Cooper was six years old, he was diagnosed with a malignant, fast growing brain tumor called a Medulloblastoma.  His diagnosis came after two weeks of intermittent unexplained nausea and one reference to blurred vision.  We were lucky.  We owe quick identification of his tumor to a combination of informed parental instinct, an astute ophthalmologist friend, and the clinical team at Boston Children’s and ultimately Dana-Farber Cancer Institute.  

Over 14 months of treatment, Cooper and our family have experienced sweeping emotions, the warmth of both our closest friends and those we have never met, and an incredible fabric of clinical, rehabilitation, and social experts across a wide range of disciplines.  

Over those 14 months, Cooper underwent a 12-hour surgery to fully remove his tumor, 30 rounds of proton-beam therapy (most of which were sedated), three-months straight at Children’s and Spaulding recovering from the surgery and Posterior Fossa Syndrome (which left him mute and mosty paralyzed for two months), several day-surgeries to place a port & feeding tube, over a dozen subsequent hospitalizations for nine cycles of chemo with subsequent transfusions or infections, and weeks on end out of school. 

Cooper’s treatment finished in February, 2018, and we are thrilled at how well he has made it through his treatment.  He is back to running around like a seven-year-old, joking with his sister, and as inquisitive as ever.  Cooper (and his wonderful sister Grace, and mom & dad) will now begin to try to claw back to some kind of normalcy while undergoing periodic scans and proactively managing possible late effects.  

Medulloblastoma is the most common type of childhood brain cancers.  It is fast growing, but if caught in time, with aggressive treatment can be treated.  We are using this fund to channel our efforts to give back and advance the community we have benefitted from over this incredibly difficult time. Cooper’s complex treatment protocols are representative of the areas the Closer to the Cure Fund will focus on for fundraising;  Early Identification, Pediatric Neurosurgery, Radiation Therapy Planning & Treatment, Precision diagnosis, Hematology & Oncology Therapy Protocols, Rehabilition and Nutrition, Family Mentoring and Support and Integrative Oncology.  

We are enormously thankful to our friends & family who have come together to support us through these complex and trying times.  We thank you all for your desire to help us to combat this terrible disease and the impact it has on families and communities.

Amount Raised from Fundraising Pages:

$84,437

Fundraisers with recent donations

Fundraising Page NameCampaignLocationAmount
MilEnd Childhood Cancer Walk / RunPhiladelphia, PA$100
Adelyn's Lemonade StandStands and EventsCheswick, PA$2,075
Chico’s Loves Lemonade Stands and EventsMount Laurel, NJ$320
Maddy’s Miles for a CureThe Million Mile 2021Ramona, CA$628
Ann Gamble's TeamThe Million Mile 2021Wynnewood, PA$275
Kayelee Ryan The Million Mile 2021Houston, TX$310
Alex’s 5K End Childhood Cancer Walk / RunPhiladelphia, PA$25
Matthew Amador 2021The Million Mile 2021Miramar, FL$353
Kendra Scott Giveback EventStands and EventsSouthlake, TX$20
Team CalebThe Million Mile 2021Jacksonville, FL$68
Nina I. Becka Memorial TeamThe Million Mile 2021Bear, DE$75
#CallieStrongThe Million Mile 2021Glendale , CA$63
CoatysThe Million Mile 2021Johnstown , CO$53
Dorothy's moversThe Million Mile 2021Mcalpin, FL$53
Gamma Nu: R.A.C. Walk for Awareness The Million Mile 2021Huntsville , AL$53
Lori's teamThe Million Mile 2021Danville, IL$53
michelle stokes The Million Mile 2021Salina, KS$53
NatalieThe Million Mile 2021Eugene, OR$53
SAP TeamThe Million Mile 2021north royalton, OH$73
Takeisa's Awesome TeamThe Million Mile 2021Virginia Beach, VA$63
Sunshine In A CupLemonade DaysWellsburg, IA$595
Columbia's Childhood Cancer CrushersALDIColumbia, SC$50
Tullahoma Aldi stand against childhood cancerALDItullahoma, TN$25
Caught in the Act NHLemonade DaysBedford, NH$225
Highland School's Lemonade Stand, 2021Stands and EventsCheshire, CT$5,039
The Oaks Children's Academy, WALemonade DaysCharleston, SC$85
3LittlePeppersLemonade DaysWinder, GA$555
Will’s 4th Annual Stand to fight childhood cancerLemonade DaysSt. Clair Shores, MI$1,017
The BearsLemonade DaysJacksonville, FL$85
Caison & Presley's Lemonade StandLemonade DaysAxtell, TX$3,215
Landing's Lemonade Lemonade DaysCharlotte, NC$148
Haven in Bloom Lemonade StandStands and EventsSchuylkill Haven, PA$66
Lily’s Lemonade StandLemonade DaysHouston , TX$25
Chatham Hockey Fights Cancer 2021Champions for Kids with CancerChatham, NJ$5,490
Lemontainment Event “4 yo MaMa!”Virtual FundraisersHollywood, CA$50
Noah and Emma's Lemonade StandStands and EventsSurprise, AZ$125
Childhood Cancer Fundraiser Virtual FundraisersOxford , PA$150
KV’s Childhood Cancer FundraiserBinGOLDWatertown, MA$875
Closer to the Cure Virtual TriviaVirtual FundraisersVirtual, MA$25
6 Green December Kindness ChallengeVirtual Fundraisersshrewsbury, MA$330
Riverwalk Lemonade StandStands and EventsConshohocken, PA$925
Team Davis The Million Mile 2020Hertford, NC$250
Children of Tomorrow Lemonade DaysWaconia, Carver, Chan., NYA, MN$1,915
Aly’s teamThe Million Mile 2020Minneapolis , MN$103
Charlotte BThe Million Mile 2020Succasunna, NJ$40
Team Luke The Million Mile 2020Tehachapi, CA$50
Hayley BurkeThe Million Mile 2020Ledyard, CT$25
Ashlyn’s Battle Strong Team The Million Mile 2020Oelwein , IA$20
Elana KesslerThe Million Mile 2020Bergenfield, NJ$50
Adrian GutierrezThe Million Mile 2020Bronx, NY$10

Total: $84,457.01

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