ALSF Fund: Declan Roberts

In the winter of 2011, Declan experienced repeated headaches and vomiting. On Valentine's Day 2011, after multiple scans, numerous tests, and his first brain surgery, Declan was diagnosed with Primary CNS (Central Nervous System) Rhabdomyosarcoma. CANCER. Our world stopped for only a moment. Long enough to take a deep breath, ask questions, get multiple 'second' opinions, and then work together with Declan and his care givers at AI duPont Hospital for Children in Wilmington, Delaware, to plan out how we could best help Declan fight his disease.

Pediatric Cancer isn't pretty. And the day-to-day routine of living with pediatric cancer would cripple most adults. Three brain surgeries, three port replacement surgeries, and months spent living in the hospital away from his two younger brothers was just part of Declan's challenge. He also tolerated more than 30 weeks of a very aggressive chemotherapy treatment plan, all while smiling, laughing, playing, and spreading his infectious joy all around him. When talking about how even heroes have bad days, Declan's response was "not me!" Even when, eleven months after the initial diagnosis, the cancer was found to have passed into his brain, Declan's main concern was that we forgot to sign him up for soccer class (which we did that afternoon!). Declan continued to fight with a passion far greater than we could have ever imagined.

Declan fought hard for -- and earned -- his angel wings on February 27, 2012. His physical presence is missed every single day. It is amazing how much a parent can learn from their child about grace and perseverance, and how much Declan's infectious positive attitude has changed the lives of so many. Through his courage, contagious smile, uplifting personality, and his amazing outlook on life, Declan inspired, and continues to inspire, those who knew him and those who simply knew of him.

In honor of Declan’s Goodness, and to continue his fight for other children, we have teamed up with Alex’s Lemonade Stand Foundation to create the Declan Roberts Full of Goodness Fund for Rhabdomyosarcoma Research.

Declan

Donations made to the Declan Roberts Full of Goodness Fund will be used to fund research into new cures for rhabdomyosarcoma.

“There are three things I can call stupid: Stupid cancer! Stupid medicine (YUCK)! Stupid shots!"

 Declan Roberts, 4

 

Donate now or register to hold your own lemonade stand or event to support the Declan Roberts Full of Goodness Fund for Rhabdomyosarcoma Research!

Amount Raised:

$85,020

Fundraisers with recent donations

Event NameCampaignLocationAmount
Donations to Declan Roberts Full of Goodness FundHonor PagesSuite 203, PA$20,158
SeaStars Walk for CancerEnd Childhood Cancer Walk / RunPhiladelphia, PA$100
Cool RunningsThe Million Mile 2023Swedesboro, NJ$147
Team Declan - The Million Miles 2023The Million Mile 2023WILMINGTON, DE$1,307
Village Garden Center Plant Sale 2023Lemonade DaysGeorgetown, TX$6,864
Amy's Annual Lemonade PartyLemonade DaysWilmington, DE$850
Team Declan - BOO!End Childhood Cancer Walk / RunPhiladelphia, PA$50
Team Declan - The Million Miles 2022The Million Mile 2022WILMINGTON, DE$1,677
Million Mile NicoleThe Million Mile 2022West Chester, PA$50
Village Garden Center BenefitLemonade DaysGeorgetown, TX$5,144
Declan’s Lemonade StandLemonade DaysDowningtown, PA$819
Amy's Annual ALSF PartyLemonade Dayswilmington, DE$1,420
Village Center Plant SaleLemonade DaysGeorgetown, TX$6,745
Team Declan Lemon Run 2021End Childhood Cancer Walk / RunPhiladelphia, PA$194
Team Declan - The Million Miles 2021The Million Mile 2021WILMINGTON, DE$3,098
Brielle's lemonade standStands and EventsDOYLESTOWN, PA$396
JP’s Be Legendary The Million Mile 2020Springfield , MA$248
Village Center Plant SaleLemonade DaysGeorgetown, TX$3,549
Team Declan - The Million Miles 2019The Million Mile 2019WILMINGTON, DE$303
Giving TuesdayVirtual FundraisersDowningtown, PA$435
Austin healthcare The Million Mile 2019Austin, TX$53
Village Garden Center EventLemonade DaysGeorgetown, TX$3,969
Caroline's 12th Birthday PartyStands and EventsBloomfield, CT$320
Lemonade for a causeLemonade DaysPendleton, IN$10
Team Declan - The Million Miles 2018The Million Mile 2018Downingtown, PA$4,419
Team Declan - Lemon Run 2018The Lemon RunPhiladelphia, PA$1,329
Christian's Lemonade StandStands and EventsWilmington, DE$275
Little Chef Restaurant Lemonade StandStands and EventsCoatesville, PA$900
Caroline's 11th Birthday PartyStands and EventsBloomfield, CT$361
West Bradford Spring Fair - 2018Stands and EventsDowningtown, PA$581
Five Years an AngelStands and EventsDowningtown, PA$1,323
Hurricane Charity Fundraiser with Training For Warriors DowningtownStands and EventsDowningtown, PA$4,374
Declan's Lemonade StandStands and EventsDowningtown, PA$1,315
West Bradford Spring Fair Lemonade Stand 2016Stands and EventsDowningtown, PA$1,619
2015 DR5 Beer TourStands and EventsDowningtown, PA$650
C4 - Cunninghams Crushing Childhood CancerStands and EventsDowningtown, PA$800
Create Hope Project/Shop for a CauseStands and EventsDowningtown, PA$50
Little Chef Restaurant/Lymberis Family Lemonade StandStands and EventsCoatesville, PA$925
Elk Run Kids' Lemonade StandStands and EventsDowningtown, PA$132
Caroline's 8th Birthday in honor of DeclanStands and EventsWest Hartford, CT$195
Declan's Lemonade Stand - West Bradford Spring FairStands and EventsDowningtown, PA$1,037
DuhmeStands and EventsMission, BC$0
Declan's Month-Long Blood DriveStands and EventsDowningtown, PA$0

Total: $80,675.42