
Childhood Leukemia
Childhood Leukemia
A Guide for Families, Friends & Caregivers, 5th ed.
By Nancy Keene
Copyright 2018
Leukemia is the most common form of childhood cancer. There are several types and sub-types of leukemia, and this guide covers acute lymphoblastic leukemia (ALL), acute myeloid leukemia (AML), chronic myelogenous leukemia (CML), and juvenile myelomonocytic leukemia (JMML). Featuring stories from childhood leukemia patients and their families, this book also contains essential information that families and friends need after diagnosis, including:
- Understanding your child’s cancer diagnosis
- Choosing the best treatment for your child
- Coping with side effects
- Identifying additional resources
We hope this guide offers support and encouragement to families with children who have been diagnosed with leukemia.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Overview of Childhood Leukemia
- 3. Acute Lymphoblastic Leukemia
- 4. Acute Myeloid Leukemia
- 5. Juvenile Myelomonocytic Leukemia
- 6. Chronic Myelogenous Leukemia
- 7. Telling Your Child and Others
- 8. Choosing a Treatment
- 9. Coping with Procedures
- 10. Forming a Partnership with the Medical Team
- 11. Hospitalization
- 12. Central Venous Catheters
- 13. Chemotherapy and Other Medications
- 14. Common Side Effects of Treatment
- 15. Radiation Therapy
- 16. Stem Cell Transplantation
- 17. Siblings
- 18. Family and Friends
- 19. Communication and Behavior
- 20. School
- 21. Sources of Support
- 22. Nutrition
- 23. Insurance, Record-keeping, and Financial Assistance
- 24. End of Treatment and Beyond
- 25. Relapse
- 26. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups
How to Use the Childhood Cancer Guides
Alex’s Lemonade Stand Foundation’s Childhood Cancer Guides are helpful resources for childhood cancer families. We’ve combined important information about diagnoses, treatments, procedures, coping mechanisms, survivorship, and more with personal stories from children and their loved ones so that newly diagnosed childhood cancer families can feel prepared and supported when starting treatment.
The cancer-specific guides are organized in a way that parallels most families’ journeys. They start with a chapter about receiving a cancer diagnosis, followed by chapters about choosing treatment options, coping with procedures, communicating with medical staff, and more. However, each chapter in the books can stand alone, so you can skip sections and only read the chapters you feel are most relevant to you at this moment in time.
When collecting stories from childhood cancer families, we wanted to emphasize the variety of experiences a child may have when undergoing treatment. Every child sails smoothly through some portions of treatment but encounters difficulties during others. Only a fraction of the problems that parents describe will affect your child. We hope these guides will offer you a better understanding of the variability of cancer experiences so that you can offer support to your own child as well as to other families you meet with differing diagnoses and circumstances.
We hope these guides are helpful resources for childhood cancer families as well as extended family members, caregivers, friends, and other loved ones. You can view the ebook version of each guide by clicking “Read This Guide.” If you are a childhood cancer family, you can request a free PDF version by clicking “Request a PDF Version” or a physical copy by clicking “Request a Printed Version.” If you are not a childhood cancer family but would like a physical copy, you can purchase one from Alex's Shop.




