Childhood Cancer Heroes

You are here

Ethan Haley

Click the images to see them larger above!

Learn more about
Ependymoma

Get the facts about Ependymoma and how our research projects are making a difference.

Learn More »

Ethan was a 12-year-old boy who loved to draw, build Legos and play with his puppy Milo. He was a Yankees fan through-and-through, and also enjoyed watching movies with his family and playing his siblings Israel, Najma, Janoah, and Ludmila in Mario Kart. A strong, joyful kid with a smile that lit up any room, Ethan never let his fight with anaplastic ependymoma bring him down.

Ethan started showing symptoms in March 2018. He was unsteady on his feet and got dizzy when lying on his side. Daily vomiting turned to hourly vomiting, and he was sleeping more than normal. For months, his parents took him to multiple specialists before he finally received an MRI that revealed a brain tumor. Kind and gentle Ethan had surgery to remove the tumor that same week. Three weeks later he started 30 rounds of radiation. This treatment seemed to work – his routine MRIs remained clear until May 2019.

However, Ethan had been having severe back pain from new tumors in his spine. A second surgery was unable to remove all of the tumor, and after recovering from the surgery, he started 30 more rounds of radiation. He also went to physical therapy to learn to walk again.

In November 2019, Ethan received some good news: his routine MRI was completely clear of tumors. Unfortunately, in February 2020, four new brain tumors were discovered. Surgery was no longer an option, so he began 10 rounds of radiation.

Ethan had been very stable and energetic up until the end of August, when another MRI showed tumor growth in his spine and head. He underwent another 12 rounds of radiation. Ethan was in a wheelchair, slowly losing function and receiving comfort care.

Ethan’s family is so thankful for Alex’s Lemonade Stand Foundation, especially the SuperSibs program. Ethan’s siblings always feel special when something comes in the mail just for them.

Update 12/22/20: Sadly, Ethan passed away on December 20, 2020.

Information provided by Kristen Haley, Ethan’s mom
Updated October 2020

Next Hero

Donate in Honor of Ethan Today!

Your donation helps to fund critically-needed research to find better treatments and cures for children with cancer.

Childhood Cancer Heroes

More Heroes

VIEW ALL HEROES
Ailani's family calls her a true Warrior Princess as she fights acute lymphoblastic leukemia. Doctors discovered Ailani harbored a rare genetic mutation, which makes standard treatment ineffective. Ailani is still waiting for her cure.
Smart and sassy, Guinevere likes to garden, dress like a princess, dance, sing, and play with her friends. When she was diagnosed with B-cell acute lymphoblastic leukemia, she could no longer enjoy those things. Thankfully, in 2022 she finished treatment.
Keaton was an affectionate little boy with a love for Marvel superheroes, especially Captain America. In April, he tripped on his way to school which led to a DIPG diagnosis. His family was told he only had six-12 months to live.
Drew is a witty and funny 9-year-old who always makes his family laugh. In 2019, after a few weeks of experiencing strange symptoms, Drew was diagnosed with rhabdomyosarcoma located primarily in his right jaw muscle. But he never asked "why me".
VIEW ALL HEROES