Childhood Cancer

You are here

Waseem Syed

  • Neuroblastoma

Click the images to see them larger above!

Learn more about
Neuroblastoma

Get the facts about Neuroblastoma and how our research projects are making a difference.

Learn More »

Waseem was a chubby, active toddler (age 3) in the beginning of the summer of 2006.  He had a great appetite and was full of energy.  During the month of August, I (his mother) noticed a change in him.  It all started with a fever that we thought wasn't very serious, so we gave him Motrin and Tylenol, intermittently to treat it because doctors said it was a virus, since his blood cultures were negative for infection.  We were told to give him plenty of fluids and keep on with the Tylenol and Motrin regimen until the virus went away.  It didn't.  We were in and out of ERs' for the whole month trying to get our boy the treatment he needed to make him better.  The fevers got worse and worse and for a time, Waseem didn't want to eat anything.  I remember making him 3 different meals at a time to try to make him eat something.  As a result, he got very weak, and finally, he did not want to walk.  Since he was nonverbal, he couldn't tell me he didn't walk because he was in pain.  I told his doctor all of this, and he saw the dark circles around Waseem's eyes and the new 'bump' on his head that pretty much appeared overnight.  He suggested we go to the nearest hospital because he was ordering a CT scan of the abdomen.  After the CT scan was completed, we were told that a tumor was found above his left kidney, the size of a small orange (6 cm around).  An ambulance was called immediately and Waseem was taken to Riley Children's Hospital in Indianapolis, Indiana.
 
That night, one of the chief pediatric oncologist was there.  Her name is Dr. Nadine Lee.  She examined Waseem, and told us the news that would change our lives.  The 'bump' on his head, wasn't just a bump...it was a tumor as well.  She said that it was most likely neuroblastoma, but she wouldn't be sure until all of the scans (bone scan, MIBG, and CT, and bone marrow aspiration) were finished.  When they were finished, they revealed 3 tumors on his skull bones, small tumors all over his ribs, small tumors all over his pelvis, and small tumors all over both of his femurs (hence the pain)...and, of course, the main tumor above the left kidney.  The diagnosis:  neuroblastoma stage IV.  A central line was placed in his chest while he was in surgery for the biopsy, and the bone marrow aspiration.  We stayed in the hospital for 2 weeks straight at this point, sorting out his new chemotherapy schedule, and for him to receive his first dose of chemo.
 
After 6 doses of chemotherapy, 1 stem cell transplant, and 12 rounds of radiation, and 6 months of Accutane, I'm happy to say that Waseem is in remission, thank God.  We only pray that he stays that way.

Written by Nikki Mancera, Waseem’s Mom

Next Hero

Donate in Honor of Waseem Today!

Your donation helps to fund critically-needed research to find better treatments and cures for children with cancer.

Childhood Cancer Heroes

More Heroes

VIEW ALL HEROES
Braxton
Braxton is a loving 6-year-old with bright red hair and an even brighter personality. Although he is one of the sweetest kids out there, he’s also a major class clown. Braxton’s goofball personality can and must fill any room with laughter. He has always
Ezra
Ezra can be a bit shy, but with his family, he’s an outgoing 7-year-old. He loves animals and can be very creative when it comes to drawing. At home Ezra’s often joking, playing video games, wrestling with his brothers and sisters or cracking jokes. It wa
Olivia is bravely fighting rhabdomyosarcoma at 6 years old. A year ago, she was diagnosed after her father noticed she had a swollen lymph node while on vacation. Olivia has since completed 20 days of radiation with 42 week of chemotherapy ahead of her.
Sass the size of Texas, serious headshakes accompanying adamant “NO”s, and a smile so beautiful it would light up a room – these were all things that painted the perfect picture of Nora. Nora fought a brain cancer until she was 14 months old.
VIEW ALL HEROES