The Childhood Cancer Blog
The Childhood Cancer Blog
ALSF Founder Alex Scott was diagnosed with neuroblastoma in 1997.
Cole beat neuroblastoma; but did not know until 15 years and another cancer later that he had Li Fraumeni, a cancer predisposition syndrome. Cole passed away at age 19.
Arden, diagnosed over a decade after Alex, had newer, less toxic and more effective treatment options, thanks to research.
Tony beat neuroblastoma as a young child but was left with long term side effects.
When Alex’s Lemonade Stand Foundation (ALSF) Founder Alex Scott was diagnosed with neuroblastoma in 1997, doctors didn’t know her cancer was driven by ALK – a mutation that fuels the development of neuroblastoma cells. And even if they did, there wasn’t a treatment in 1997 for ALK-driven neuroblastoma.
But today, there are effective treatment options for that type of neuroblastoma, thanks to research.
Over the past two decades, incredible progress has been made in the treatment of neuroblastoma. From identifying targets and developing drugs to leveraging genetic testing... Read More
September is Childhood Cancer Awareness Month. It is a month when we honor children with cancer, children who have survived cancer and the children who have died from cancer. It is a month of “Going Gold,” and working to ensure that childhood cancer is spotlighted.
At Alex’s Lemonade Stand Foundation (ALSF), Childhood Cancer Awareness Month is about more than awareness—it is about action. Our founder, Alex Scott, left us a legacy of working together, contributing what we could and knowing that no matter who we are or what our contribution is, we can make a difference.
... Read More
Travis Cook is living with an inoperable but stable brain tumor. Now a high school graduate, cancer has left some late effects. He suffers from chronic daily headaches and nausea, struggles with fatigue and PTSD symptoms. Yet, through diagnosis, treatment and now survivorship, Travis has set big goals to someday work as a doctor or researcher and helps kids just like himself.
Transitioning from the routine of treatment back into the routine of life outside of cancer can bring a myriad of challenges for survivors. The transitions between grades and schools and into the workforce... Read More
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