Nancy Keene , a well-known advocate and writer, is the parent of a 20-year survivor of childhood cancer. Nancy has written several books about childhood cancer including Childhood Leukemia: A Guide for Families, Friends & Caregivers (now in its fourth edition); Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers (now in its second edition); Chemo, Craziness & Comfort; Working with Your Doctor ; and Your Child in the Hospital (now in its second edition and translated into Spanish). She has edited many books, including Educating the Child with Cancer and Childhood Brain and Spinal Cord Tumors .
Nancy spends considerable time talking in person, on the telephone, and online with parents of children with cancer and survivors. She was the first chair of the Children’s Cancer Group Patient Advocacy Committee, and then the first chair of the Children’s Oncology Group (consortium of approximately 230 institutions that care for children with cancer) Patient Advocacy Committee. She is one of the original members of the online support groups sponsored by the Association of Online Cancer Resources ( www.acor.org ) that provide resources and emotional support to families and survivors.
Nancy lives in Washington State and works to keep the pediatric oncology books in print through the nonprofit Childhood Cancer Guides ( www.childhoodcancerguides.org ).
Wendy Hobbie is Associate Director of the Cancer Survivorship Program at Children’s Hospital of Philadelphia, one of the first comprehensive follow-up clinics in the United States. In addition to co-authoring Childhood Cancer Survivors , Wendy is one of the editors and chapter authors of the textbook for professionals, Survivors of Childhood Cancer: Assessment and Management (now in its second edition). She has published numerous articles in peer-reviewed journals on topics such as the late effects of treatment for childhood cancer, the role of the nurse practitioner in follow-up care, and risk taking and decision making by survivors of childhood cancer. She is frequently invited to present lectures to healthcare professionals, cancer survivors, and their families on a variety of cancer survivorship issues.
For 29 years, Wendy has devoted her professional life to the research and clinical care of survivors of childhood cancer and their families. Through education, Wendy has empowered survivors with the knowledge to advocate for themselves in the healthcare system and society. Wendy lives with her husband Dan and two children, Jonathan and Sarah, in Philadelphia.
Kathy Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children’s Center for Cancer and Blood Diseases at Children’s Hospital Los Angeles (CHLA). She has been involved in the areas of late effects and survivorship for more than 25 years. Kathy established the CHLA LIFE Program along with its annual Survivor’s Day celebrations and survivor scholarship program. Kathy is one of the editors and chapter authors of the textbook for professionals, Survivors of Childhood Cancer: Assessment and Management (now in its second edition). She has published and lectured extensively on topics such as transitions in care, survivorship needs, and the role of nurses in late effects evaluation.
Kathy is the mother of a son, Daniel, who is now 26. Living with Daniel, who is profoundly deaf, has brought new challenges and opened new worlds. Her personal experience as the mother of a young person with a disability has enriched her perspective and deepened her commitment to finding ways to help children and their families survive and transcend the experience with cancer.
Table of ContentsAll Guides
- 1. Survivorship
- 2. Emotions
- 3. Relationships
- 4. Navigating the System
- 5. Staying Healthy
- 6. Diseases
- 7. Fatigue
- 8. Brain and Nerves
- 9. Hormone-Producing Glands
- 10. Eyes and Ears
- 11. Head and Neck
- 12. Heart and Blood Vessels
- 13. Lungs
- 14. Kidneys, Bladder, and Genitals
- 15. Liver, Stomach, and Intestines
- 16. Immune System
- 17. Muscles and Bones
- 18. Skin, Breasts, and Hair
- 19. Second Cancers
- 20. Homage
- Appendix A. Survivor Sketches
- Appendix B. Resources
- Appendix C. References
- Appendix D. About the Authors
- Appendix E. Childhood Cancer Guides (TM)