"All of us have seen patients lose their struggle with cancer. And that’s not okay. The status quo is not acceptable.” – Steven DuBois, MD, Lakelynn’s doctor
Every day, children like Lakelynn are diagnosed with cancer. They fight daily, to beat an unforgiving disease that interrupted their childhood. As a passionate supporter of Alex’s Lemonade Stand Foundation (ALSF), you know how important your donation is to that fight. Make your impact felt by giving to ALSF and support cutting edge research projects that pursue safer, more effective treatments for all kids.
Through December 31, all donations will be matched by:
This is Lakelynn.
Lakelynn is six years old and a typical kindergartener in nearly every way but one. Lakelynn is in treatment for an inoperable tumor wrapped around the nerves that control her arm.
Three years ago, Lakelynn started complaining about a “boo-boo” in her arm. Lakelynn’s parents, Leslie and Mike, trusted their intuition and kept pushing for answers from doctors. An X-ray was ordered, which led to an MRI, which ultimately revealed the source of Lakelynn’s pain: childhood cancer.
At this point, Lakelynn’s pain was so intense and the tumor was compressing so many nerves that she had stopped using her right arm completely. Surgery and radiation were too risky.
There were no options for Lakelynn, except for pain management. Or so they thought…
This is the research that saved Lakelynn’s life.
Then, genomic testing revealed that Lakelynn’s tumor harbored an NTRK gene fusion, where the NTRK gene fuses to an unrelated gene that can drive the development of cancer. Within 48 hours of learning more about Lakelynn’s diagnosis, the family headed to Boston to see Dr. Steven DuBois at the Dana-Farber Cancer Institute.
Funded through ALSF’s Center of Excellence program, Dr. DuBois was leading a trial for a drug called larotrectinib, which showed promise for kids like Lakelynn, who were battling cancer with the NTRK fusion.
The trial worked. Lakelynn’s tumor shrunk and remains stable. Now, three years after the boo-boo in her arm threatened to take away her childhood, Lakelynn continues treatment at Dana-Farber. And that drug was approved by the FDA last year, so more children can access this effective treatment.
Today, if you passed Lakelynn on the playground or saw her swimming in the pool, you’d never know she was fighting cancer. While Lakelynn continues to fight for her own cure, she has her childhood back, all thanks to donors like you.
This is what childhood should look like.