Bear Necessities Pediatric Cancer Foundation is a 501(c) 3 national organization founded in 1992 by CEO/President, Kathleen A. Casey and her son, Barrett “Bear” Krupa, who lost his life to pediatric cancer in 1993. Currently, Bear Necessities funds pediatric cancer research (Bear Discoveries) nationwide & The Bear Hugs Program in Chicago that offers patients comfort and courage through everyday acts of caring because of their understanding that the little things do mean a lot.
We are thrilled to partner with the charities below to co-fund projects and thank them for their persistence and dedication to fighting against childhood cancer.
Chance for Life was founded in 2005 by Brad Nierenberg after his best friend’s daughter, Kennedy Snyder, was diagnosed with an aggressive spinal cord tumor at age two. What began as a 20-person poker fundraiser has become DC’s charity event experience for pediatric cancer research. 100% of the net proceeds from the event go to funding clinical trials.
The Cure4Cam Childhood Cancer Foundation supports the development of new, more effective and safer therapies to treat childhood cancer. Today’s standard treatments can be highly toxic, creating intolerable side effects and causing lasting health issues. Cure4Cam was founded in honor of Cameron Evans, a top runner for his middle school cross country team with a passion for technology, who, only days after competing in a middle school championship cross country race, was diagnosed with leukemia. After a tough fight, Cameron passed away at age 14. The Cure4Cam Foundation raises money to fund new and innovative cancer research to develop therapies that target individual cancer cells.
Emily’s Smiles was formed in 2016 after Emily passed away from AT/RT (Atypical Teratoid Rhabdoid Tumor), a very rare form of pediatric brain and spine cancer. Emily smiled through her treatment of intense chemotherapy, numerous surgeries and radiation. As a result, her infectious smile is the reason for the name of the charity founded in her memory. Emily’s family continues to raise money for children who have brain cancer in the hopes that one day soon, no child is told that they have this disease.
Flashes of Hope is a nonprofit organization that changes the way children with cancer and other life threatening illnesses see themselves through the gift of photography and raises money for pediatric cancer research. The portraits, taken by award-winning photographers, help children feel better about their changing appearance by celebrating it. For families of terminally ill children, it's especially important to have a portrait that preserves forever the beauty, grace and dignity of their child.
Founded by a 10-year old cancer patient, their Kick-It program raises money for children’s cancer research by supporters playing kickball. Flashes of Hope’s goal is to photograph every child until every child is cured.
The I Care I Cure Childhood Cancer Foundation was founded by Beth and Brad Besner in honor of their son Ian who died in May, 2006 at 11 years of age from complications related to his leukemia treatments. The Besners knew they needed to devote their efforts to educating the public about and finding gentler, more humane cures for childhood cancer. They created the Foundation, a registered 501(c)3 charity, that supports research focused on discovering drugs that target cancer cells only, while leaving healthy cells intact. With targeted treatments, patients should have fewer painful side effects and fewer long-term health problems.
Izzy’s Infantry is a nonprofit organization started by the parents of Isabel “Izzy Warrior Princess,” a childhood cancer hero diagnosed with a spinal cord tumor after just a year old. Izzy’s Infantry aims to fund research that will lead to better treatment options and a cure for childhood cancer; to fund rehabilitation programs for children recovering from a spinal cord injury; and to help improve the quality of life for children in treatment and their families through outreach programs and support groups.
Kate’s Cause was formed after Kate Olivia Rhoades passed away from childhood cancer at the tender age of four. After she passed, her family promised that her death would not be in vain and launched the cause in her honor and memory to accomplish three goals.
- Raise Awareness: Currently, the federally funded National Cancer Institute (NCI) only allocates 4% of its annual budget to research for childhood cancers. Small organizations such as ours cannot do it alone. We NEED the government to help make our children a national priority and provide MORE THAN FOUR!
- Raise Funds: We want to support the most promising prospects in pediatric oncology research: for better and less toxic treatments for the kids in treatment today and for the kids who will be diagnosed tomorrow.
- Give Back to the Pediatric Cancer Community: We want to support the pediatric cancer community that so wholeheartedly embraced us through various donations, drives and activities for Kate’s beloved clinic, The Pediatric Specialists of Virginia Center for Cancer and Blood Disorders and her treatment hospital, Inova Children’s Hospital.
Layla’s Legacy Foundation was formed after Layla Stamp passed away from pediatric brain cancer at the age of five. In honor of Layla, her family established Layla’s Legacy Foundation in 2018. Based out of Texas, Layla’s Legacy’s efforts are focused on funding innovative research and supporting families impacted by pediatric brain tumors. Layla’s Legacy also works closely with social workers at hospitals to understand specific financial needs they have. Spearheaded by Sara Stamp, Layla’s mom and executive director of Layla’s Legacy, the foundation helps and brings hope to families impacted by pediatric brain tumors across the country.
Love Your Melon is an apparel brand dedicated to the fight against pediatric cancer. Fifty percent (50%) of net profit from the sale of all Love Your Melon products is given to the Love Your Melon Fund to support our nonprofit partners in the fight against pediatric cancer, create therapeutic experiences, and fund charitable programming initiatives for children and their families battling cancer. To date, we have given over $6.1 million dollars to the fight against pediatric cancer and over 160,000 hats to children battling cancer.
Founded by Brenda Crow and Brenda Frohnapfel, Marshall County Childhood Cancer Awareness Corporation (MCCCAC) was started in July of 2016. Brenda Crow is a school secretary who has been raising money for childhood cancer for two years. Brenda Frohnapfel is a school bus driver who lost her daughter, Abby, to acute myelogenous leukemia (AML) in August of 2015. Abby was an honors student at John Marshall High School and was very active in her school, church, and community. Abby was a healthy teen until her diagnosis. Her form of cancer was extremely fast growing, and she passed away after only 57 days. She was 16 years old. The Frohnapfel family is very happy to be in on the forming of the MCCCAC. They feel it is a wonderful way to honor Abby.
Based out of California, the McKenna Claire Foundation funds research into finding a cure for DIPG, which currently has a 0% cure rate. The McKenna Claire Foundation was formed after McKenna Claire passed away from pediatric brain cancer at the age of seven. After she passed, her family promised that they would honor her legacy and perpetuate the sense of community that lifted them during their darkest time.
The mission of the Northwestern Mutual Foundation is to improve the lives of children and families in need. The Foundation has given more than $353 million since its inception in 1992 and is designed to create lasting impact in the communities where the company's employees and financial representatives live and work. We accomplish this by combining financial support, volunteerism, thought leadership and convening community partners to deliver the best outcomes. Our efforts are focused nationally on curing childhood cancer, and locally on education, neighborhoods and making our hometown of Milwaukee a great destination.
The Pediatric Cancer Research Foundation (PCRF) is an independent, nonprofit organization that identifies and invests in leading edge research that demonstrates the best hope for a cure for childhood cancer. Since its founding in 1982, PCRF has raised over $44 million dollars and funded over $34 million towards the ultimate goal of ending pediatric cancers so children and their families can re-focus on the joys of childhood. PCRF has maintained a stable foundation financially including attaining a Platinum rating from GuideStar. Donors can have confidence in PCRF’s ability to fund the best researchers in the world, with the utmost attention to financial efficacy and transparency.
Inspired by a big heart and brain, the RCD Foundation was created in June 2013 in the memory of Robert ‘Connor’ Dawes. Who, at just 18 years of age, lost his 16-month battle with brain cancer. Now, the foundation works tirelessly to support brain projects in the areas of research, care and development – to fund the science to end brain cancer and support patients in the meantime. This involves contributing funds to brain tumor research, supporting patients with at-home rehabilitation including music and yoga therapy, as well as development initiatives that inspire the next generation of brain cancer practitioners and researchers.
SebastianStrong Foundation, based in Miami, Florida, is a registered 501(c)(3) charity that honors the life of Sebastian Ortiz (2000-2016) by increasing awareness of childhood cancer and raising money to fund research for less toxic, more targeted childhood cancer cures. This mission was born from the example of strength set forth by Sebs during his courageous 14-month battle with rhabdomyosarcoma. Since his passing in December 2016, the Foundation bearing his name has bolstered the support of donors from across the country.
At Storm The Heavens Fund we believe there is no cause greater than the fight for our children's right to grow up to be adults. Our mission is to advocate for our children by raising funds for desperately needed research and spreading awareness. 0% survival is unacceptable, we must do better.
Sydney Harper Foundation, based in Narberth, PA, was founded in 2018 following the unexpected death of three-year-old Sydney Harper from complications of Wilms Disease, a rare form of pediatric kidney cancer that often strikes without any symptoms. The foundation creates and funds programs that provide education and awareness of pediatric cancer; increase knowledge around early prevention, detection and treatment of Wilms Disease and other forms of pediatric cancer; provide support, resources and a sense of community to those impacted.
Tap Cancer Out is a 501(c)3 nonprofit mobilizing and empowering the Brazilian Jiu-Jitsu community to raise funds for cancer-fighting organizations. Since 2011, they have raised and donated nearly $1.7 million to their beneficiary organizations, providing valuable assistance to critical cancer fighting initiatives and programs. ALSF is proud to be the benefiting charity for Tap Cancer Out through 2019.
The Brian Morden Foundation (BMF) funds childhood cancer research, supports patients, family, and staff of pediatric oncology units, awards scholarships, educates and raises awareness about childhood cancer. The BMF was created in memory of Brian, a courageous 19 year old, who battled Ewing sarcoma for more than two years. He lost the battle on February 15, 2003, but his family, friends, and many others who only knew Brian by reputation have vowed to continue the fight against childhood cancer.
The Butterfly Foundation, also known as The Brittany Pasqual Pediatric Oncology Research Foundation, was created in 2002 in memory of 5-year-old Brittany Pasqual who succumbed to the same cancer as Alex Scott, neuroblastoma. In an effort to eliminate pediatric cancers, The Butterfly Foundation is dedicated to investigating and discovering the causes of pediatric cancer; developing effective strategies to prevent pediatric cancer; and educating and empowering those who are dealing with pediatric cancer through advocacy programs.
The ChadTough Foundation inspires and funds game-changing research to discover effective treatments for pediatric brain cancer, with an emphasis on Diffuse Intrinsic Pontine Glioma (DIPG), which had been underfunded, compared to most cancers. Founded in 2015 in memory of Chad Carr, the Michigan-based Foundation is approaching nearly $5 million in grants for pediatric brain tumor research, including the establishment of the Chad Carr Pediatric Brain Tumor Center at the University of Michigan. The Foundation maintains a vision of a day when DIPG and other brain cancers can be survivable for children.
The RUNX1 Research Program is a non-profit organization committed to finding a cure for RUNX1-FPD and to support patients in the RUNX1 community by providing a forum in which to help connect, inform and educate patients on the disorder. In addition to providing grants for relevant research projects, the program hopes to build public awareness, educating both patients and healthcare providers on the latest research regarding the disorder.
RUNX1 FPD is a hereditary blood disorder which predisposes an individual to acquiring leukemia in his or her lifetime. The disorder carries a 50 percent lifetime risk of progressing to leukemia through the acquisition of additional mutations in other genes.
The Swifty Foundation was founded by Michael Gustafson before his death from brain cancer in 2013 at the age of 15. Michael’s “Master Plan” was to donate his tumor tissue to science so a cure might be found for other children. Since that time, the Swifty Foundation has started Gift from a Child, a national initiative to promote post-mortem tissue donation and open-access data sharing. Besides tissue donation Swifty focuses on funding brain cancer research and promoting collaboration within the childhood cancer community.
Turn It Gold was inspired by Charlie Dina and his battle with stage 4 high risk neuroblastoma. Charlie was diagnosed at age 4 and was given a 50% chance of survival. Today, Charlie is surviving and teaching us what “Be Brave” means every day as he strives to remain cancer free. Turn It Gold fights for the voiceless youth in the pursuit of elevating childhood cancer awareness and generating bold action through story sharing, events, and athletic activism with hopes to change the percentage of dollars invested in childhood cancer research and make a real difference for a cure. #TURNITGOLD