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Alex's Lemonade Stand Foundation Blog

Welcome to the official blog of Alex's Lemonade Stand Foundation!

June 10, 2019
  • Edie, pictured above with mom Emily, celebrated her 10th birthday on June 7.
    Edie, pictured above with mom Emily, celebrated her 10th birthday on June 7.
  • Emily and Edie Gilger, together with their oncologist Dr. Yael Mossé at the 2019 Lemon Ball.
    Emily and Edie Gilger, together with their oncologist Dr. Yael Mossé, shared their story at the ALSF Lemon Ball in January 2019.
  • Edie and her mother Emily battled the same ALK-driven neuroblastoma.
    Edie and her mother Emily battled the same ALK-driven neuroblastoma.

My husband, Nick always tells people that without Alex’s Lemonade Stand Foundation (ALSF) and without the research you support, he would not have a family. And it’s true. My daughter Edie, me, my son Kinsey—none  of us would be here if it weren’t for ALSF.  

My daughter, Edie, was born June 7, 2009 in Lynchburg, Virginia. 

When Edie was six months old, she was diagnosed with Stage 4 neuroblastoma. She had two tumors growing out of each adrenal gland crossing over her mid-section and invading her pancreas, kidneys,... Read More

May 31, 2019
  • Maddie Davis, pictured above, has been battling pediatric ependymoma for over 5 years.
    Maddie Davis, pictured above, has been battling pediatric ependymoma for over 5 years.

Brain tumors are the deadliest form of childhood cancer, accounting for 30% of all cancer deaths each year.*  Sometimes just centimeters in size, these tumors present real treatment challenges because of their critical location in the brain. 

Even though the five-year survival rate is 74%**, the reality is that even children who survive 5 years after diagnosis are not necessarily cancer-free, and they may not survive 6 years. 

It sounds bleak—but it is a call to action. At Alex’s Lemonade Stand Foundation,... Read More

April 30, 2019
  • CCDL director, Casey Greene, PhD, believes the best is still to come. We interviewed Casey about the CCDL’s advancements and what exciting developments are ahead.
    The CCDL team regularly trains pediatric oncology researchers on how to use refine.bio to accelerate the pace of their research.
  • The CCDL Team (from L to R): Casey Greene, Candace Savonen, Kurt Wheeler, Ariel Rodriguez Romero, Deepa Prasad
    The CCDL Team (from L to R): Casey Greene, Candace Savonen, Kurt Wheeler, Ariel Rodriguez Romero, Deepa Prasad
  • refine.bio brings together decades of data sets for childhood cancer researchers to download and use for their own research.
    refine.bio brings together decades of data sets for childhood cancer researchers to download and use for their own research.

The Childhood Cancer Data Lab (CCDL) started with what seemed like a simple mission: develop tools to help pediatric oncology researchers access data, easily and quickly, in order to speed the work towards cures. 

Of course, creating those tools is anything but simple. 

Take refine.bio, the CCDL’s online repository of childhood cancer data. This tool took several decades' worth of publicly available childhood cancer data, all written in different languages, translated it, and placed it all in one... Read More

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