Childhood Cancer Survivors
Resources
Website: ccgresources.org
All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.
Alex’s Lemonade Stand Foundation
Website: www.alexslemonade.org
Search, childhood cancer families
Alex’s Lemonade Stand Foundation (ALSF) is changing the lives of children with cancer by funding impactful research, raising awareness, supporting families, and empowering everyone to help cure childhood cancer. ALSF offers many programs and tools to help families navigate the challenges of childhood cancer.
American Cancer Society (2024)
Website: www.cancer.org
Search, childhood cancer, then, late effects of childhood cancer treatment, second cancers
Children’s Oncology Group (V6, Oct 2023). Long-Term Follow- Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers.
Website: www.survivorshipguidelines.org
Click below to download Individual Health Links:
Subsequent neoplasms: breast cancer, colorectal cancer, reducing subsequent cancers, skin health
National Cancer Institute, Division of Cancer, Epidemiology and Genetics
Website: https://dceg.cancer.gov
Search, childhood cancers, second cancers
Passport for Care, Survivor Care Plans by Children’s Oncology Group (V6, Nov 2023)
Website: https://cancersurvivor.passportforcare.org
Survivors and family can find online updated tailored long-term care plans which should be reviewed with their oncologist or health care provider.
Table of Contents
All Guides- Acknowledgements
- Contributors
- Foreword
- Preface
- 1. Survivorship
- 2. Emotions
- 3. Relationships
- 4. Navigating The System
- 5. Staying Healthy
- 6. Genetic Testing And Childhood Cancer
- 7. Diseases
- 8. Fatigue
- 9. Brain And Nerves
- 10. Hormone-Producing Glands
- 11. Eyes And Ears
- 12. Head And Neck
- 13. Heart And Blood Vessels
- 14. Lungs
- 15. Kidneys, Bladder, And Genitals
- 16. Liver, Stomach, And Intestines
- 17. Immune System
- 18. Muscles And Bones
- 19. Skin, Breasts, And Hair
- 20. Subsequent Malignancies
- About The Editors
