Website: ccgresources.org

All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.

Find a survivorship clinic near you:

Website: www.oncolink.org

Search bar: Find a survivorship clinic, clinic search

Alex’s Lemonade Stand Foundation

Website: www.alexslemonade.org

Search, childhood cancer families

Alex’s Lemonade Stand Foundation (ALSF) is changing the lives of children with cancer by funding impactful research, raising awareness, supporting families, and empowering everyone to help cure childhood cancer. ALSF offers many programs and tools to help families navigate the challenges of childhood cancer.

American Academy of Pediatrics (AAP)

Website: www.healthychildren.org

Search, cancer survivors

Resource for parents

American Cancer Society (ACS)

Website: www.cancer.org

Centers for Disease Control and Prevention (CDC)

U.S. Department of Health

Website: www.cdc.gov

Children’s Oncology Group. (V6, 2023). Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers

Website: www.survivorshipguidelines.org

How to use this resource

This is a resource for healthcare professionals who provide ongoing care to survivors of pediatric malignancies. Healthcare professionals who do not regularly care for survivors of pediatric malignancies are encouraged to consult with a pediatric oncology long-term follow-up center if questions or concerns arise when reviewing or using these guidelines. Survivors who choose to review these guidelines should do this with the assistance of a healthcare professional knowledgeable about long-term follow-up care for survivors of childhood, adolescent, and young adult cancers. The screening recommendations in these guidelines are appropriate for asymptomatic survivors of childhood, adolescent, or young adult cancer presenting for routine exposure-based medical follow-up. For survivors presenting with signs and symptoms suggesting illness or organ dysfunction, more extensive evaluations are needed, as clinically indicated.

For survivors:

Download a copy of Summary of Cancer Treatment (Abbreviated or Comprehensive) and check Health Links (Appendix II) To access patient education materials on a variety of subjects listed alphabetically (ie. bleomycin alert, breast cancer, chronic pain, dental health, eye health, mental health, precocious puberty)

Passport for Care, Survivor Care Plans by Children’s Oncology Group (V6, Nov 2023)

Website: https://cancersurvivor.passportforcare.org

Survivors and family can find online updated tailored long-term care plans which should be reviewed with their oncologist or health care provider.

Summary of Cancer Treatment form. Children’s Oncology Group (V6, Oct 2023) Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers.

Website: www.survivorshipguidelines.org

Click on: Summary of Cancer Treatment (Comprehensive or Summary)