Website: ccgresources.org

All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.

Children’s Oncology Group. Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers, Version 6.0 (October 2023)

Website: http://www.survivorshipguidelines.org

Click under Health Links for: dental health, osteoradionecrosis

FACES—The National Craniofacial Association

Website: https://www.faces-cranio.org

Let’s Face It

Website: https://media.dent.umich.edu/faceit

Locks of Love

Website: https://locksoflove.org/

A nonprofit organization that provides hairpieces to financially disadvantaged children under the age of 21 suffering from long-term medical hair loss. (It does not provide hairpieces for temporary hair loss due to chemotherapy and radiation.)

234 Southern Blvd, West Palm Beach, FL 33405-2701

Phone: (888) 896-1588 or (561) 833-7962

Passport for Care, Survivor Care Plans by Children’s Oncology Group (V6, Nov 2023)

Website: https://cancersurvivor.passportforcare.org

Survivors and family can find online updated tailored long-term care plans which should be reviewed with their oncologist or health care provider.

Sjögren’s Syndrome Foundation,

Website: https://sjogrens.org