Childhood Cancer

Childhood Cancer Survivors

Body Size And Weight

Heights of survivors can be affected by radiation to the spine or alterations in hormone production (Chapter 10, Hormone-Producing Glands). Changes in body weight also can occur in small numbers of survivors. Long-term weight loss can be caused by malabsorption and other gastrointestinal problems (Chapter 16, Liver, Stomach, and Intestines). At the other extreme, some studies show that a percentage of survivors become obese.

Some studies show that survivors who were treated with doses of 1800 centigray (cGy) or more of cranial radiation have an increased likelihood of being obese. Risk factors include higher cranial radiation dose, surgical location, pre-cancer history of growth hormone deficiency, hypothyroidism, hypogonadism, not able to exercise (Children’s Oncology Group, Long-Term Follow-Up Guidelines for Survivors of Child, Adolescent, and Young Adult Cancers, Version 6 (October 2023) Section 52, Overweight; Obesity (www.survivorshipguidelines.org)

Follow-up screening and detection for monitoring growth

Monitoring growth includes plotting your height and weight on a chart at regular intervals. Measurements should be taken every 2 to 3 months during therapy and for the first year after therapy, and then once or twice a year until growth is complete. Abnormalities in weight or height require a consultation with an endocrinologist or gastroenterologist experienced in treating survivors of childhood cancer. An endocrinologist is a doctor who specializes in the glands in the body that produce hormones and can diagnose and manage problems in their function. A gastroenterologist is a doctor who specializes in identifying and treating problems with the body’s gastrointestinal system (the esophagus, stomach, small intestine, colon and rectum, pancreas, gallbladder, bile ducts, and liver).

For more information about growth, see Chapter 10, Hormone- Producing Glands.

Medical management of body size and weight issues

If you are underweight or overweight, you need a consultation with a medical specialist, such as a gastroenterologist or endocrinologist, as mentioned above. Growth hormone deficiency results in lack of full growth potential and also should be addressed. A discussion with a dietitian can also be very helpful in planning a healthy diet. A plan for weight loss usually includes an increase in exercise and changes in diet. Family participation in physical activities also helps survivors maintain a normal body weight.

I now have been diagnosed with autoimmune disease which affects my muscles/joints and nerves. I take steroids to help that. I have myasthenia gravis which causes communication breakdown between the nerves and muscles, and my muscles feel weak and get tired easily. My eye-sight is blurry and my eyes droop. I do see a neurologist to help treat/manage it.