Childhood Cancer Survivors
Resources
Website: ccgresources.org
All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.
American Cancer Society (ACS)
Website: www.cancer.org
Search, childhood cancer, late effects, neuroblastoma
Children’s Brain Tumor Foundation (CBTF)
Website: https://cbtf.org/
CBTF supports survivors, parents, and siblings from diagnosis throughout the entire journey.
Children’s Oncology Group (V6, 2023). Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers
Website: www.survivorshipguidelines.org
Passport for Care, Survivor Care Plans by Children’s Oncology Group (V6, Nov 2023)
Website: https://cancersurvivor.passportforcare.org
Survivors and family can find online updated tailored long-term care plans which should be reviewed with their oncologist or health care provider.
National Cancer Institute (NIH)
Search: types of childhood/adolescent cancers
For statistics: Search, childhood cancer statistics.
Table of Contents
All Guides- Acknowledgements
- Contributors
- Foreword
- Preface
- 1. Survivorship
- 2. Emotions
- 3. Relationships
- 4. Navigating The System
- 5. Staying Healthy
- 6. Genetic Testing And Childhood Cancer
- 7. Diseases
- 8. Fatigue
- 9. Brain And Nerves
- 10. Hormone-Producing Glands
- 11. Eyes And Ears
- 12. Head And Neck
- 13. Heart And Blood Vessels
- 14. Lungs
- 15. Kidneys, Bladder, And Genitals
- 16. Liver, Stomach, And Intestines
- 17. Immune System
- 18. Muscles And Bones
- 19. Skin, Breasts, And Hair
- 20. Subsequent Malignancies
- About The Editors