Childhood Cancer Survivors
Glossary
Comprehensive Summary of Cancer Treatment document, complete detailed medical history including type of cancer and all treatments with dates and specific treatments received (radiation, chemotherapy, and surgeries) www.survivorshipguidelines.org/ Click on : Summary of Cancer Treatment (Comprehensive or Summary).
gynecologist, a medical doctor who treats issues with female reproductive organs. They deal with all aspects of sexual health like preventive care, cancer screenings and physical exams. Some of the services and tests provided are: pelvic exams and external genital exams., Pap tests and cancer screenings, and testing for sexually transmitted infections.
healthcare social worker (or licensed clinical social worker), a professional provider with special education and training to help you understand your diagnosis and what it means for your future. They may help you adjust your lifestyle, housing or medical needs to live more comfortably and independently. For example, they may help you find home healthcare aids or support groups.
internist, doctor of internal medicine who only treats adults (over age 18) and specializes in the diagnosis and treatment of internal organs and systems of the body (not limited to those areas); they do not perform surgery.
late effects, physical, psychological or social problems/issues that arise after treatment and cure of cancer as a result of the treatment received; these effects can be immediate or develop/occur years after treatment completed.
nurse coordinator, a professional RN who oversees the work of a team of healthcare professionals in their department or unit. Clinical nurse coordinators provide both clinical and administrative leadership.
pediatric oncologist, a medical doctor who diagnoses and treats cancer in children and teens; many also specialize in hematology (treatment of blood disorders) and are referred to as pediatric oncologist/hematologist.
pediatric nurse practitioner (PNP), a specialized advanced practice nurse who cares for newborns, infants, toddlers, adolescents, and young adults. PNPs provide comprehensive care, including well-child and physical exams; diagnose illnesses and form treatment plans; and offer health education for patients and their families. They work closely with physicians and medical teams in hospitals, clinics, and schools. In some cases, a PNP may be the primary source of care for an individual or family.
nurse practitioner (NP), a registered nurse with advanced education/training to evaluate, diagnose, and treat various acute and chronic health conditions as part of a patient’s healthcare team; they can interact with patients without supervision of a medical doctor for certain health conditions and manage patient caseloads and focus on communication and educating patients to become willing participants in their own healthcare.
primary care provider (PCP), a physician (MD or DO), nurse practitioner, clinical nurse specialist (nurse practitioner) or physician assistant (PA), as allowed under state law, who provides, coordinates or helps a patient access a range of healthcare services (healthcare.gov); also known as your primary doctor/nurse practitioner/PA.
psychologist, a professional trained and educated to help people with problems with their feelings and emotions including cognitive, emotional and social relationships
survivorship, the point in life when your cancer treatment ends and the journey into your future begins
survivorship program or clinic, a program designed to provide long-term, multidisciplinary follow-up of successfully treated patients at the original treatment center or by a team of healthcare professionals who are familiar with the potential adverse effects of treatment for childhood cancer. Teams include nurse coordinator, pediatric oncologist, nurse practitioner, and sometimes a social worker and psychologist. The team has a close working relationship with specialists such as cardiologists, endocrinologists, orthopedic surgeons, and other specialists whose services are needed by some survivors.
Adult survivorship program or clinic (for those over age 18) will include same team members as the pediatric except they will be adult oncologist and adult/family practice nurse practitioner
Table of Contents
All Guides- Acknowledgements
- Contributors
- Foreword
- Preface
- 1. Survivorship
- 2. Emotions
- 3. Relationships
- 4. Navigating The System
- 5. Staying Healthy
- 6. Genetic Testing And Childhood Cancer
- 7. Diseases
- 8. Fatigue
- 9. Brain And Nerves
- 10. Hormone-Producing Glands
- 11. Eyes And Ears
- 12. Head And Neck
- 13. Heart And Blood Vessels
- 14. Lungs
- 15. Kidneys, Bladder, And Genitals
- 16. Liver, Stomach, And Intestines
- 17. Immune System
- 18. Muscles And Bones
- 19. Skin, Breasts, And Hair
- 20. Subsequent Malignancies
- About The Editors
