Website: ccgresources.org

All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.

Children’s Oncology Group (V6, Oct 2023). Long-Term

Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers.

Website: www.survivorshipguidelines.org

Healthlink: Mental health

American Childhood Cancer Organization (ACCO)

Website: www.acco.org

ACCO provides support, education, and advocacy for children and adolescents with cancer, survivors of childhood/adolescent cancer, their families and the professionals who care for them. P.O. Box 498, Kensington MD 20895

Cancer Care

Website: www.cancercare.org

A nonprofit organization that provides a variety of services, including counseling, education, referrals, publications, and financial assistance.

275 Seventh Ave, New York, NY 10001

(800) 813-HOPE or (800) 813-4673

Chai Lifeline

Website: www.chailifeline.org

A non-profit organization with the mission of providing critical support to children and families around the world who are impacted by serious illness, crises, and loss.

151 W. 30^th St., New York, NY 10001

Phone: (212)465-1300

Camp Simcha

Website: www.campsimcha.org

Special summer camps for children with cancer, other blood disorders, and chronic illness.

Family Voices

Website: www.familyvoices.org

National organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promote partnership with families, including those of cultural, linguistic and geographic diversity in order to improve healthcare services and policies for children.

561 Virginia Road, Bldg 4, Suite 300. Concord, MA 01742

Phone: (888) 835-5569

Momcology^®

Website: https://momcology.org/

National community-based patient advocacy and support organization founded in 2011 by mothers of children with cancer.

Passport for Care, Survivor Care Plans by Children’s Oncology Group (V6, Nov 2023)

Website: https://cancersurvivor.passportforcare.org

Survivors and family can find online updated tailored long-term care plans which should be reviewed with their oncologist or health care provider.

Ulman Cancer Foundation

Website: https://ulmanfoundation.org

UCF supports, educates, connects, and empowers young adult cancer survivors. It raises awareness of young adult cancer issues and helps ensure all young survivors and their families have a voice and the resources necessary to thrive.

Ulman House, 2118 E. Madison Street, Baltimore MD

Phone: (410) 914-0202