Website: ccgresources.org

All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.

Children’s Oncology Group (V6, 2023). Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers

Website: www.survivorshipguidelines.org

How to use this resource

This is a resource for healthcare professionals who provide ongoing care to survivors of pediatric malignancies. Healthcare professionals who do not regularly care for survivors of pediatric malignancies are encouraged to consult with a pediatric oncology long-term follow-up center if questions or concerns arise when reviewing or using these guidelines. Survivors who choose to review guidelines are strongly encouraged to do this with the assistance of a healthcare professional about long-term follow-up care for survivors of childhood, adolescent, and young adult cancers. The screening recommendations in these guidelines are appropriate for asymptomatic survivors of childhood, adolescent, or young adult cancer presenting for routine exposure -based medical follow-up. For survivors presenting with signs and symptoms suggesting illness or organ dysfunction, more extensive evaluations are needed, as clinically indicated.

For survivors:

Download a copy of Summary of Cancer Treatment (Abbreviated or Comprehensive Health Links (Appendix II) access patient education materials on a variety of subjects listed alphabetically (ie. bleomycin alert, breast cancer, chronic pain, dental health, eye health, mental health, precocious puberty)

Passport for Care, Survivor Care Plans by Children’s Oncology Group (V6, Nov 2023)

Website: https://cancersurvivor.passportforcare.org

Survivors and family can find online updated tailored

long-term care plans which should be reviewed with

their oncologist or health care provider.

Alcoholics Anonymous (AA)

Website: www.aa.org

American Academy of Dermatology - sunscreen sun protection

Website: https://www.aad.org/media/stats-sunscreen

American Cancer Society

Website: www.cancer.org

Search, risk prevention, tobacco, health risks of smoking/vaping

https://www.cancer.org/cancer/risk-prevention/tobacco/

Centers for Disease Control and Prevention (CDC) Smoking/vaping

U.S. Department of Health

Website: www.cdc.gov/tobacco/site.html

Website: www.smokefree.gov

(tips on how to quit/live chats)

Website: https://bit.ly/quitSTARTapp

Centers for Disease Control and Prevention (CDC) Skin cancer/sun protection

Website: https://www.cdc.gov/skin-cancer/

Videos: https://www.youtube.com/watch?v=QrZRlNdfEz4

Centers for Disease Control (CDC) – Vaccination/immunization recommendations (2025)

Website: www.cdc.gov/vaccines

Human Papillovirus (HPV) vaccine

Website: www.cdc.gov/hpv

Centers for Disease Control (CDC) – Physical activity/exercise

Website: www.cdc.gov/physical-activity/

CDC photos

FIGURE 5-1. Health benefits of physical activity for children. Source: Physical Activity Guidelines for Americans, 2nd edition, CDC; https://www.cdc.gov/physical-activity-basics/health-benefits/children.html

FIGURE 5-2. Download the quitSTART app to get started on your quit smoking journey. It can help you create a quit plan, find tips to help you quit smoking, manage cravings, and more! https://bit.ly/quitSTARTapp

FIGURE 5-3. Use sunscreen of at least 30 SPF to protect yourself from damaging UV rays. Source: CDC, https://www.cdc.gov/skin-cancer/sun-safety/