As a child, Jennifer was diagnosed with hepatoblastoma, a rare cancer that originates in the lobes of the liver. While in treatment, Jennifer’s nurse Pat Brophy, who was also ALSF Founder Alex Scott’s nurse, supported Jennifer and her parents through a scary, uncertain time. Pictured above, Jennifer and her nurse, Pat Brophy in 1995.
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The Childhood Cancer Data Lab (CCDL) started with what seemed like a simple mission: develop tools to help pediatric oncology researchers access data, easily and quickly, in order to speed the work towards cures.
Of course, creating those tools is anything but simple.
Take refine.bio, the CCDL’s online repository of childhood cancer data. This tool took several decades' worth of publicly available childhood cancer data, all written in different languages, translated it, and placed it all in one... Read More
“Data is the lifeblood of science,” says Jaclyn Taroni, PhD, data scientist at the Childhood Cancer Data Lab.
When you think of childhood cancer research, you may imagine samples in test tubes and microscopes or a drug being tested in a clinic. And while childhood cancer research certainly happens in a biochem lab and in a clinic, it also happens inside the Childhood Cancer Data Lab (CCDL). Funded by ALSF, the CCDL team is working to harness the power of big data and use it to cure childhood cancer.
So what is big data?
“Data is the lifeblood of science,” says Jaclyn Taroni, PhD, data... Read More