Childhood Cancer Survivors
Resources
Website: ccgresources.org
All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.
American Academy of Audiology
Website: www.howsyourhearing.org
The website provides extensive resources for families, features Find an audiologist, Managing hearing loss and balance conditions, anew over-the-counter hearing aids resources: questions and answers
11730 Plaza America Drive, Suite 300; Reston,VA 20190
American Academy of Ophthalmology
Website: https://aao.org
Search: what are cataracts, eye health, diseases
American Society for Deaf Children
Website: https://www.hearingloss.org
American Speech-Language-Hearing Association
Website: www.asha.org
Search, Pure-tone testing in children
Hearing Loss Association of America
Website: https://www.hearingloss.org
Phone: (301) 657-2248
Hearing impairment - books
Ogden, Paul W. (1996). The Silent Garden: Raising Your Deaf Child.
Washington, DC: Gallaudet University Press.
Schwartz, Sue. (2007). Choices in Deafness: A Parent’s Guide to Communication Options, 3rd ed. Bethesda, MD: Woodbine House.
National Eye Institute
Website: https://www.nei.nih.gov/
Passport for Care, Survivor Care Plans by Children’s Oncology Group (V6, Nov 2023)
Website: https://cancersurvivor.passportforcare.org
Survivors and family can find online updated tailored long-term care plans which should be reviewed with their oncologist or health care provider.
Table of Contents
All Guides- Acknowledgements
- Contributors
- Foreword
- Preface
- 1. Survivorship
- 2. Emotions
- 3. Relationships
- 4. Navigating The System
- 5. Staying Healthy
- 6. Genetic Testing And Childhood Cancer
- 7. Diseases
- 8. Fatigue
- 9. Brain And Nerves
- 10. Hormone-Producing Glands
- 11. Eyes And Ears
- 12. Head And Neck
- 13. Heart And Blood Vessels
- 14. Lungs
- 15. Kidneys, Bladder, And Genitals
- 16. Liver, Stomach, And Intestines
- 17. Immune System
- 18. Muscles And Bones
- 19. Skin, Breasts, And Hair
- 20. Subsequent Malignancies
- About The Editors
